Nice to meet you, and thanks for posting. I am really glad to hear that Humira is working well for you! That is great to hear! I know how hard it is to taper on the prednisone. 40 mgs is quite alot and I understand for sure how you needed to taper down. I have never been on more than 5 mg because it upsets my stomach and lower track badly if I take any more than that, and even with 5 mg its hard to taper it lower ( at least for me ). I am told by the dr. that it is ok to take it for a year, but no longer than that..... it has been effective to help me thru the past year as well as the vicodin I mentioned. I am hoping that I will get alot more relief with Humira since my pain level has gone up considerably. Since it effects people differently there's just no way to tell how I will do until I start taking it. In the event it doesn't work for me I need a back up plan....something I can take that I can live with and not be in bed debilitated,feeling completely horrible 24/7. Suffering all day in extreme pain with AS is a terrible thing, as you know, and if there are pain meds to help manage my symptoms of extreme pain I definitely opt for that. Regarding vicodin & other pain meds, I am aware of course, regarding addiction and I know that I am not addicted. There is a difference between addiction and dependence. My body is dependent on them to function with the severity of my PsA/AS. I have weaned myself off vicodin several times thinking it might be the best thing for me to do...suffer and put on a happy face....I was wrong...and the end result is always back to square one....feeling extreme pain, hardly being able to walk, not being able to do much of anything and being in bed most of the time. Not much of a lifestyle to say the least...I would opt for quality of life anyday when it comes to making a decision on taking the pain medication when prescribed. I have hurt long enough and if the Humira does not work it won't be like a (choice) for me. The way it was explained to me is: Diabetics need insulin.....people with high blood pressure need bp meds, and chronic pain patients need pain meds if other treatments do not work. Unfortunately, the people who abuse pain meds have given them a bad name for those of us who are in severe pain and legitamately need them. If my rheumatologist thinks I should be taking them too, then I know I have made the right decision. Needless suffering I can surely do without.
I don't have the usual skin problem with my PsA for some reason..(at least at this point)..I have a couple of spots on the top of my foot and thats about it...I've been lucky in that dept...they itch like crazy tho. I didn't have these when I was diagnosed with PsA....just since last june actually. Hopefully Humira will take care of that situation too.....I am hoping it works for all of it and am keeping my fingers crossed. It would be wonderful to only just have to take humira and nothing else. Time will tell. I am not familiar with the med you mentioned but I have written it down and will ask about it at my appt.....
Thanks again for posting and for the info....we disagree somewhat on the meds options for treating this disease, when indicated, but I do respect your point of view.
I hope you continue to have great results with Humira and keep on feeling better!
wishing everyone a pain free day!
PsA, AS, Trigeminal neuralgia,