What do I do now?

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Regular Member

Date Joined Aug 2005
Total Posts : 289
   Posted 1/12/2007 7:55 PM (GMT -7)   
I have been decreasing my dose of prednisone as recommended by the rheumatologist office by 2.5mg weekly.  Once down to 17.5mg I started to notice I was hurting again but nothing I couldn't deal with so I continued the decreases and things stayed the same all the way down to 7.5mg.  Now I am down to 5mg and I really hurt.  Still able to walk but enough now that I am not going to be able to exercise and want to cry.  I don't want to be on the prednisone anymore.  I also take 2 tylenol 2-3 times daily along with 2000-3000mg of fish oils.  It looks like the MTX was never really helping and it was just the prednisone all along.  January 29th would be 12 weeks, did I give it long enough?  I figure once the pred is tapered to 2.5mg or to 0mg I am going to be right back where I started which really sucks.  I feel so useless.  I know my insurance won't pay for the other meds and that I won't be able to afford them yet I most likely as with everything else will overqualify for assistance so should I just give up on treating this condition altogether?  Anyone else down here in the dumps with me.  Feel like whining.  Not having a good day.
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
Meds: Methotrexate 20mg wkly, Prednisone 20mg decreasing,  Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, tylenol PRN.

Veteran Member

Date Joined May 2006
Total Posts : 1179
   Posted 1/13/2007 2:03 AM (GMT -7)   
i tell u it is hell getting off prednisone! parden my curse, but when i went off I HURT SO BAD. i am not gonna kid u if u will be like me it will hurt bad coming off. i stopped in mid october and i hurt bad til about just 2 weeks ago. it put me on a cane many times without but i didnt want the pred anymore. gosh just talking about how good u feel on prednisone makes me want it like a piece of cheesecake! i now can deal with my pain again and function without the prednisone but on it i was pain free and since i have never been pain free again but at least i am now functional. i also have lost 10 pounds off the prednisone which was one of my drives cuz i gained like 30 on it. when my pain got so bad my rhuemmy over the phone told me just to go back on it, but i was determined as i knew i couldnt be on it for life? my wrists hurt now just typing and my heals and ankles too but as much as i love the prednisone physically- i disliked being on it too. so good luck. u will hurt getting off and until u find the right mix -which i have not yet- u probably will hurt. the mtx does not cut it alone for me but i can endure this pain right now and might just keep it like this with no more meds? idk? good luck yalinda

Harley Diva
Regular Member

Date Joined Oct 2006
Total Posts : 160
   Posted 1/14/2007 4:19 AM (GMT -7)   
Hi Babybloo....Sorry you are not feeling well. The MTX has taken about six months to fully kick in for me. it was slow to work. I do feel better now. I am also gong off the prednisone. I went down from 20 mgs very slowly. I am now at 2.5 but is has taken most of a year to get down that low. I am currently having pain and a slight increase in inflamation. I hope things level out for you. I agree with Yalinda on the prednisone. I enjoy being pain free but am not willing to pay the long term price of prednisone. Give the MTX a few more weeks. I am on 15 mg. once a week and it seems to be helping.
Harley Diva
....RA, HPT,  drugs: Sulfasalazine, MTX, prednisone, bp meds

Regular Member

Date Joined Dec 2006
Total Posts : 74
   Posted 1/21/2007 6:39 PM (GMT -7)   
Hey Babyloo,

Just curious, what kind of health insurance do you have...Beucase maybe your Rhuemy can prescibe you Enbrel, humira or perhaps Rituxan, Rituxan is all a Drug that is like Humira & enbrel only difference is that u do the treatment as an out patient basis in a hospital setting, its also known as infusion treamtents, the first treatment is the longest, beucase they make sure that you dont have a reaction to it, and you do the Rituxan treaments every couple of months, maybe that might be worth menting to your Rhuemy, I knew a patient at my job, and she tried Rituxan, and she swears by it...

I was thinking about taKING it for my self...Beucase Im hating taking all my meds....

I hope you feel better, and just hang in there, its hard to get off pred, but evenually your body will be free from it...Just keep up posted...

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