Thanks guys. I saw the ID doc this morning and I thought she was wonderful. She didn't strike me as arrogant, although she did seem to know a lot. She was a bit pissed because she requested specific information from my primary and my primary didn't bother to send it. Why? Because she didn't want to go through my chart and pull out the relevant information. After talking to her, though, she made connections to other things that have happened to me this past year (i.e., the whole lung issue) and she feels that is very relevant and was wondering why my primary didn't bother to tell her about that, but my rheumy did.
Eve, I realize that a low grade fever is dismissable, but when you're taking a biologic like enbrel, I don't think you should ignore it. This ID doctor, when she found out be the lung issue, was immediately put on alert to a latent tb infection that had been reactivated by the enbrel (which has happened to others and has been documented by the FDA). I had a negative tb test, but in addition to strange findings on my chest x-ray, I had apical scarring and pleural thickening show up on the ct scan, a pattern that is typical of an old tb infection. In fact, pulmonologist asked me twice if I had ever had tb or been exposed to tb. Interestingly enough, my mother (according to my father) had 'strange' things show up in her chest x-ray too. Doctors repetitively asked her if she had ever had tb. She hadn't either. But it makes me wonder if we were both exposed to something unknowingly. I did live in Spain as a kid for a while.
My rheumy, when he suggested I go to an ID doc, actually recommended a doctor in Silver Spring--I wonder if it is the same one? Yes, please email me the info. I am definitely looking for a new primary who is board certified in internal medicine and the listings in Frederick are rather scarce.
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan