Problems with RA meds working.....

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New Member

Date Joined Jan 2007
Total Posts : 14
   Posted 1/26/2007 10:28 AM (GMT -7)   
I have had RA for over a year, the orgianl RA Dr refused to diagnose me with it saying it was all in my head, (ya it was in my head that I had no use of my arms and legs) Anyways I fianlly got a good RA Dr. and she started me on 30 mg of prednisone and a low dose of Methotrexate, which seemed to help a great deal and I was able to at least continue to work (for the most part I have a desk job Thank god) and over the last few months we've Decreased the prednisone and increased the methotrex, well I started to be in alot of pain again so we put me bacl up to 10mg of prednisone and add plaqeunil and something else I cant think of the name for. This all helped a little, but the last week I have been in trendous pain with my hands and knees and have even missed work.  So I am not sure if meds just arent working or what I did miss two weeks worth of the methotrexate at one point and didnt notice a differance in how I felt, but if i miss a single dose of steroids I reall can fell it, which leads me to believe that all this time the steroids were the only thing makeing me feel half way decent to begin with, so i see the Ra dr again soon and last time we talk she said if I wasnt feeling better by the time i saw her again, we would try Enbreal injections. From what I have read with some people Enbreal takes a long time to kick in, I hope its not the case for me, I am in tears every morning lately not knowing how i am gonna make it throught the day. I want to quit work and file for disabilty but the fact that i am only 30 and have 2 kids to raise and support and even if  I did get disabilty it would be nearly enough to get by on. I am ranting I know sorry, I take a hot hot shower everymorningt o loosen up my stiff joints which works for all of 10 minutes then I hobble with my cane on my way to work, if it wasnt for my mother helping with my everyday needs like cooking for the kids house work ect. I dont know what I would do. This RA really has just effected my life so much I am very frustrated and just want something to finally work.
So I was just wondering if anyone else has gone through the same problems with their meds and what finally worked.

Regular Member

Date Joined Nov 2006
Total Posts : 147
   Posted 1/26/2007 12:35 PM (GMT -7)   
Hi Kellyconcord,
Very nice to meet you. I know that it is very painful and frustrating. I tested positive with RA a year and a half ago. But my Rheumy wouldn't even treat me without seeing physical signs of the RA. Every time I had a major flare he either couldn't see it or it wasn't present. Finally one day, like six months or so later I had to go see him for my appt. and I was in a flare in my hands. He says oh ok you do have RA. Then started me on the mothotrexate. But the whole meanwhile he had me on the steroids also. The methotrexate did not work for me..too many side affects. Then he put me on enbrel...well since then I have been fighting infections..he put Humira..broke out with a bad rash and couldn't take that so now today I get to start my enbrel please hang in there. Sometimes it takes time but everyone is different and treatment with the enbrel may come sooner for you. My two sisters take it and it has worked wonders for them. My one sis works till this day and she has had two knee replacements. The other doesn't need to work. Her husband makes bank. Unfortanately I did have to quit my job. I couldn't take the pain anymore. I was first diagnosed with Fibro. so I have been in pain for years. And just recently filed for disability. And because this RA hit my lungs and heart, and I'm still battling it. But I keep in mind that my Superior Being will not give me no more than what I can't handle...I hope you feel better and get some relief real soon...
Fibro, RA, IBS, Anxiety, Depression, insomnia,(Pluersy, Pericarditis, Vasculitis) in the last three months. Now diagnosed with Myositis and Mitral Valve Prolapse 1/15/07.
Meds: Serax 10mg, Mobic 15mg, Prednisone 12-1/2mg and tapering, Prilosec 20mg, Vicodin 5/500, Morphine 30mg ER , Flonase, Calcium and magnesium, Robaxin 500mg, Nortriptyline 50mg, Baby aspirin 81 mg, zocor 20 mg, Will be starting Enbrel next week.

Regular Member

Date Joined Dec 2006
Total Posts : 74
   Posted 1/27/2007 8:00 AM (GMT -7)   

Hey Kellyconcord,

well I too understand ur Frustrations and then to top it off we are in the prime of our years, and get rob from it, and feel like we are 80, when we are technically soo young...

My Battle w/Ra hasnt been easy, as Im sure that its never easy for anyone...Ive been a gunniea pig with all kinds of meds...The only Meds that really work for me is Enbrel, Plaquenil,Sulfasalize,Coclchine, Diflinsal...and did I mention I probally Have a damm whole in my stomach from all this crap...soo Yea it works..just hang in there..

The Plaquenil works but takes forever to kick in, However Enbrel it took me up to the 3 rd feel bettter and considering I was taking enbrel twice a week, that wasnt soo bad.

Enbrel has it side effects, but soo does everything else...right now I have a sore throat, and a little sniffle...becuase I increased my dosage of enbrel last week to control my flare ups...soo things like that can happend...or u get the sinues infections...but ya know its worth it beucase atleast im 85% better...which is better than nothing....

I do hope you feel better, and just remember if you ever need to Vent, this is the perfect forum to Vent...we are here for you...

Best Regards,




Veteran Member

Date Joined Nov 2006
Total Posts : 1331
   Posted 1/28/2007 3:12 PM (GMT -7)   

Hi Kelly,

I'm so sorry you hurt sad The difficult thing is when we have to keep pushing ourselves to our limits, this only makes the RA that much worse.  This I have learned the hard way.  It does take over your life at times doesn't it?

My daughter had a school carnival on Friday evening, and the moms needed help wrapping up cakes and cookies, and I was so slow, and I could see my fingers starting to swell and turn red, it was awful.  By the time I got home, I could hardly move them eyes

Its difficult finding the right medication or combo of medications, and hanging in there is so hard!!! I'm on plaqeunil right now and I am supposed to go back because it is not working but I am afraid of what I will end up taking next sad   I keep hoping the plaquenil will magically start working :-)

Being a mom and having this is not easy....I hope the Enbrel will work for you.  If you need to vent, this is the place to do it, there are so many kind and caring people who understand what you are going through.


New Member

Date Joined Jan 2007
Total Posts : 14
   Posted 1/29/2007 7:51 AM (GMT -7)   
Thanks so much everyone for your words. I am glad to know I am not the only one out there haveing problems, not that I am happy about someone haveing to go through this , its just nice to know that I am not crazy, this is real unlike what the first couple Dr.'s said.

Has anyone found other things that help ease the pain other then meds, like i said a hot shower in the morning helps for all of the few minutes I am in there, and a heating pad is usless, and I heard hot tub were bad for arhtritis????
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