How have you managed without water & plumbing for so long? Hope it actually is up & running today! We don't realize how lucky we are to have all these conveniences sometimes. I wouldn't make a very good "pioneer". Hope you're holding in there...mentally & physically!
Erin, Sorry about
the state of your financial being. We have 2 pairs...if only there was a way to get them to you. Not the easiest shape to ship :-(
Today was not the best of days for my offspring...has had a couple of real rough weeks with severe inflamation of all large joints. He stopped the REMICADE because it caused psoriasis (odd phenom because it's prescribed to alleviate psoriasis), best of it was it was helping the RA. By this past weekend he could hardly get out of bed. SOS call put in to Dr office 8:15 AM Monday...3:45PM reply " tomorrow, 8:45 AM". OK, not exactly what we wanted but never the less beggars can't be choosers. Everything went well until the x-ray tech started manhandling him. Needed lots of different films done and the guy was trying to bend things that just don't bend anymore. When he got to the lumbar one he wanted him to do do some sort of contortion that compromises his hip surgery. The guy was swearing. Well, that sent M into meltdown and he came out of there into the main lobby of the imaging dept at USC HealthCare, half dressed, no shoes, saying at the top of his voice...words to the effect that this tech doesn't know what the "expletive" he's doing., etc. I had trouble getting him to calm down. Needless to say he's going to put in a formal complaint. I of course wanted to die because he's never done anything like that before. Admiitedly when he's had his knees aspirated and shot up with cortisone the F bombs fly but he's been in the privacy of soundproof exam room and it's been solved now by having them give him a towel to bite on! That's one painful procedure. My heart goes out to all who've suffered this.
So anyways, we manged to escape before security was called ;-) Got home and sorted out new treatment with friendly neighborhood pharmacist...KINERET. Special order but will have it tomorrow. Will continue with methotrexate but has increrased dosage to eight tabs a week (up from 6). Prednisone to stay at 10mg/daily and folic acid. Anyone been on this regimen? If this doesn't work then ENBREL at a higher dose than before or RITUXAN will be next. Lets hope though neither of those will be necessary and this will be the "magic bullet".
Sorry to ramble...I'd sell myself to the Devil just to make M better!
Take care everyone and know my heart feels for all of you as well,
Post Edited (Jemima Puddleduck) : 2/6/2007 10:50:32 PM (GMT-7)