Ok, my 2 cents, I am like Deckie, give me a dx and quit dancing around & tossing dx's out left & right. GI and I were talking a couple weeks ago while I was in the hospital, humm, well sometimes I wonder if you have Lupus, its obvious you IBD arthritis. But no real meaningful dx. We all know when that pain hits, it so much different than the usual pain. I know the difference of the OA pain that have. I have found mine to be unrelenting and pain meds really do not take care of it. Keep in my I have this implanted pain pump, plus 2mg of Dilaudid for BT pain. When it hits all I want to do is cry. Its like its got to run its course and then be done with it. I honestly feel when this is going on that the body is attacking itself. Recently PCP sent me for blood work, tested positive on ANA and an elevated CEA. He did not know what the CEA was. So, I get to see a rheumy the middle of next month.
Was at ER couple of weeks ago. Bad diarhea, stomach pain, pain in my back and trouble breathing. Did nothing for me, except try to push IV steroid shot on me and a script for Medrol Dosepak. I do not tolerate steroids, I go into congestive heart failure on them. Oh yes, this er dr knew all about it, but chose to pretend I knew nothing. For nothing wrong with me, the following day my gi had the er dr in the small town where they are, to admit me. I spent 8 days in there. I don't mind telling ya, I was one sick puppy. Turns out I had a bacterial infection in my colon, COPD kicked up and a kidney infection from hell. I came home with oxygen, can't tell ya the difference its made having it too. Not real happy about dragging a tank around, but guess what, I sure am breathing easier. In the process of seeing a pulmonary dr. In the middle of all of this, I am trying to find a new PCP. I learned the hard way, the clinic I have gone to for at least 10yrs, none of the drs have hospital privleges which means its up to an ER dr to admit me and then have to bring drs in that know nothing about me. Do you have any idea how hard it is to get admitted. ER dr was not interested in the fact I have cd he only wanted to push steroids on me for the COPD.
Hope all are well as can be. If anyone has any input for me I would really appreciate it. Oh, did get an x-ray report mailed to me from ER, severe fatty liver infilltration, according to recent reading here not uncommon in folks with cd. Hugs to all, Susie