saying hello to everyone

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Date Joined Feb 2003
Total Posts : 15334
   Posted 2/11/2007 3:37 PM (GMT -7)   
Hey Gang,
Long time no see from me. I have turned into a terrific lurker, lol. Actually, I have had to cut my computer time back to pretty much nothing. My feet and legs swell so bad when my feet are hanging down.
I hope all of you have been doing as well as you can be. Erin you are working again or back in school, which is it? CAMama how are you doing these days. ElCamino are you doing better these days? Does anyone know how Flopsie and Duckey are doing?
I think my medical situation is trying to drive both me & my poor docs nuts. I just got of of the hospital Sat a week ago. I was in the hospital for 8 days. This day and time thats really unheard of. My COPD really got bad and I could not breath, but I was also sitting on the throne with a trash can in my hands. Did this 2 days straight, then got so weak I could not stand on my feet. I was so bad I could not dress myself so I went in my PJ's. It turns out I did not have a crohns attack, but I had a bacterial infection in my colon that mimiced E Coli. All I know is I was sick. I came home with oxygen from a company. I had been having a terrible time with my breathing but chose to keep my mouth shut cause it just seems like I am either sick all the time or something new is coming unhinged. So, here I am with hospital jewelry. My sats at night were dropping in the low 70's and low 80;s during the day. The therapist and I discussed maybe this is why I was having confusion, falling alot, terrible balance. I really feel better with the oxygen on. Recently had lab work done and it came back funky, positive ANA and high CEA. My dr does not know what the CEA is and neither do I. I see a rheumy next month. Managed to get me a hernia too in the stomach, kind of high up. Was in the ER the day before I was admitted, they sent me a copy of my labs stating I have a severe fatty liver and to get into my dr ASAP. Well, I am getting ready to fire my PCP and get me a new one. I learned the day before I was put in the hospital, I had gone to my PCP to see what he thought cause I was so sick, his words is you need to be in the hospital but I do not have hospital priveleges so you will need to go to ER and hope you can convince them to admit you. Hello, convince them hell, well, it did not work that evening, I was sent home. Next day My gi met me at the hospital and admitted me. I need a PCP that can put me in the hospital if it is warranted. I don't need to spend worrying if this is going to be covered or not.
I am still doing Remicade for my crohns but I am feeling like it is not carrying the punch it used to. But, I have been on it 4 yrs. Recent scope in June after being sick for 3 months revealed ulcers in the colon-never had any problems with the colon before. Like I say, if its not one thing, its another. So, I sometimes feel like a bomb getting ready to explode. Erin if you read this and know anything about that CEA please post it.
Hope everyone is doing best too. Hugs, Susie

Regular Member

Date Joined Feb 2007
Total Posts : 52
   Posted 2/11/2007 4:28 PM (GMT -7)   
Hi Straydog,
I love yoru screen name. I have just been on the forum since Friday. I am sorry to hear you are having so many problems. I have rhumatoid arthritis and all that goes with it. I am on remicade every eight weeks and all I can say is that things are better than they were last year. I am sick the last couple of years more than I would like. I pray you feel better soon. Take care

Veteran Member

Date Joined Mar 2005
Total Posts : 3148
   Posted 2/12/2007 8:21 PM (GMT -7)   
aaaaaaaah! Susie!  geezaloo what happened to you?!?!?!?!
holey moley woman! what a fiasco.
  confused CEA?  the CEA i know of is a tumor marker for cancers.  it's not a conclusive one however.  CEA if i recall correctly is increased in suspected colon CA, stomach, pancreatic, GI, liver and thyroid cancers.  it can also be elevated when someone has bleeding intestinal ulcers, IBD, polyps, COPD, liver & kidney inflammation.
how the freak didn't the doc know that? duh! eyes MED SCHOOL 101.
anywhoo...before ya get nervous...there are a lot of variables so you do need more blood work done to rule out a whole bunch of stuff.
me? work sad i'm home. not well...but hangin' in.  on Remicade! i go every 3weeks.
well you rest up sweetie.  keep that O2 pumpin'!
{{{{{{{{{ hugs }}}}}}}}}}}
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Restaril; Dilaudid 4mg tabs for pain. 

Veteran Member

Date Joined Mar 2005
Total Posts : 3199
   Posted 2/13/2007 11:24 AM (GMT -7)   
Susie! Wow, long time no talk.. so good to see you.. sorry things are this bad though... please hang in there and keep us posted...
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

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