Hi there Puppy!
I think with the Remicade...it is titrated by a person's severity of the disease & response to the drug.
I went on Remicade after failing Enbrel (for 2 years) & Humira (one year...that I was taking 2 shots a week which is more than usual).
My doc started Remicade in October 2006. One infusion than 2 weeks...then he tried 4 weeks and I ended up in the ER. So we kept it at every 3 weeks at 300mg.
I wish I can go every 2 weeks!
I start to feel worsening of joint pains at about 2 1/2 weeks.
It's really rough with that plus a slew of other immunosuppresants I am on. Leaves me wiped out. Down for the count!
Yeah, HealingWell is wonderful. There are things w share here that one can only get here and no where else...no doctor or nurse or pamphlet can replace sharing experiences.
You're a great asset AkiPuppy here! So glad you found this forum.
I feel I have had more influence on my healthcar from here than my own physician! There's this one member, StrayDog...who was a GREAT help for me...stearing me down the right path when a lot of things went wrong...she went through similar things, and ultimately was the one who suggested I push for Remicade. Glad I did!
There are a few really strong bonds here between people...makes ya wanna go on a road trip to meet them!
You take care & have a good evening!
When do you go for your next infusion? Do you go at the hospital or an outpatient chemo center at a Dr.'s office?
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Restaril; Dilaudid 4mg tabs for pain.