I have AS and last night I was ready to just give up. I hurt everywhere. My ankles. My knees really, really bad. I could hardly walk, bend them at all. They felt like they were on fire and something was jabbing them. My hips hurt so I couldn't lay on either side and to top it all off, my back hurt on the right side middle. All I could do was cry. I've taken Vioxx, Bextra, Celebrex, Methotrexate, Sulfasalazine, ibuprofen, tylenol, and aspirin. The only thing I'm currently on is the aspirin. The sulfa gave me mouth sores and I took folic acid and the standard formula to swish with. The methotrexate I'd taken before and had no problems with it but it wasn't giving me much relief. So after we discovered I was allergic to the sulfa I went back on the methotrexate. This time around it gave me mouth sores, so I quit taking it. The aspirin isn't working, celebrex doesn't work etc. AAARRRRRGGGGGG!!!!! I can't afford to take Enbrel, Humira or Remicade. My co-pay, just the co-pay mind you is $700 fricking dollars for each dosage. So out the window goes that. I don't qualify for the drug assistance program that Montel is an advocate for. We have health insurance, for which I'm grateful. I just don't know what else to do. I cancelled my appointment with my rheumy because I'm tired of being a laboratory. Any one out there had luck with something else? If so, I'll remake an appt with the doc and talk to him about it. As it is, my hubby is going to have to take me to the urgent care I think. This just sucks and isn't worth it anymore. I don't know how my Grandma did it. She had RA so bad, so bad. Yet I never heard her complain and she was always stretching and trying to move her joints around. She said it was helping to keep them from freezing in place. She had such a strong spirit. I miss her and would love to be like her. But I'm not. Instead, I'm a whiner.
"God grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference."
DX: ankylosing spondylitis, periferal neuropathy, chronic migraines/headaches, depression/panic attacks, bi-polar, hypothyroidism, hypoglycemia, sleep apnea
RX: synthroid, estradiol, prozac, lamictal, inderal la, klonopin, seroquel, imiprimine, aspirin, (relpax, maxalt, phenergan, esgic plus, xanax, PRN for migraine)
Surgeries: hysterectomy 1997, tonsillectomy 2001, deviated septum 2005, cataracts (both eyes) 2006