Still just suspicious for tb, don't have a positive PPD; just have a suspicious ct scan (apical scarring) combined with a pretty consistent low grade fever. Saw ID doc this morning and she has decided to treat me for tb and see how my fever responds to the antibiotics. Because tb is the reason for the antibiotics, she had to report me to the public health department. I had to go over there to pick up the package for a sputnum culture (ick); needless to say I was treated like a pariah. I had to ring a separate doorbell, and was taken immediately to a doctor's office that opened to the outside of the building. It had special ventilation, and when the tb nurse came in, she was wearing a mask and turned on the airconditioner, which I guess provided even more ventilation. She told me not to be alarmed; it was just protocol. After talking with her, she realized that if I had tb, it was latent tb, not active tb, and I wasn't contagious. She called me a very interesting case--not your typical tb patient. Don't know whether I should be insulted or not:) Nevertheless, it was quite an experience. In any case, ID doc called my rheumy this morning while I was there, and I have to stop the enbrel for the next 9 months or so while I'm being treated for tb! Rheumy kept me on the mtx and plaquenil, presumably to help with the rebound arthritis (which happens when you come down off one of the tnf-inhibitors). My head is still spinning--ID doc is very aggressive--she doesn't mess around. She got very indignant because when she tried to call my rheumy, the receptionist wouldn't let her talk to him unless it was an emergency. She asked her pointblank how many rheumatological emergencies they actually had. While I'm sure there are some emergencies, I would imagine it's not that common in a rheumatology office. She eventually got him on the phone, and after she finished, she proceeded to tell me that she will and often does go to bat for her patients. If they need something, she will get it done. That made me feel very secure having her as my ID doctor. that's all for now--sorry for the discombobulated post. Things just happened so fast...
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan