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Veteran Member

Date Joined Sep 2005
Total Posts : 1744
   Posted 4/27/2007 10:55 AM (GMT -7)   
I saw a new GI yesterday morning because my stomach has not been very happy, especially with all of the drugs I've been taking.  He said based on my past colonoscopies (I had copies of the reports), he does not believe I have IBD.  I had aphthous ulcers in my colon on my first colonoscopy, which is where the entire IBD idea came from.  GI told me that the fleet prep used for colonoscopies can cause those.  I used a fleet prep for the first colonoscopy--wa lah--ulcers.  Golytely prep for the second one--no ulcers.  Makes sense to me, but why do they still use the fleet prep if it can cause ulcers? 
Based on my symptoms (it often feels like someone is punching me in my stomach), he told me that since I've been on aciphex, it is impossible for me to have gastritis.  At the time I didn't question him because I know that PPIs eliminate acid production.  However, acid is not the only cause of gastritis, and at my second EGD, gastritis was a finding, and I was taking the same amount of aciphex that I'm taking now.  With respect to my lower right abdominal pain, he thinks it may be my gall bladder and he ordered an u/s to further investigate.  Or it may be IBS, which had occurred to me before but I've not been officially diagnosed with that because no GI doctor I've seen thus far was willing to exclude everything else so that an IBS diagnosis can be made.  Or it could possible be celiac disease, which is testing me for (antibody test).  I've been reading a bit about celiac disease, and did you know that joint pain and swelling is a symptom?  Who would have thunk it?  One article I read was a study write-up that found a significant  portion of RA patients dramatically decreasing their inflammation by going gluten-free.  Erin, I wonder if that's partially why the Maker's Diet worked for you?
In any case, I think this guy is wrong on a couple of counts, but at least he's willing to further investigate.  Despite the fact that I've had 2 colonscopies and 2 EGDs, none of the GIs I've seen have been interested enough to order an u/s or antibody tests.  I will point out the gastritis finding on last EGD despite PPI use when I see him in a couple of weeks.
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan

Veteran Member

Date Joined Mar 2005
Total Posts : 589
   Posted 4/27/2007 1:29 PM (GMT -7)   


I responded to your post on the Crohn's board, but yes Celiac can cause severe joint pain, muscle pain and a host of other issues, it is also considered an AI disease.  It can be mis-diagnosed and is hard to diagnose.

Biopsy and blood work are the best, but sometimes even that can't always give a firm diagnosis (in a small %).  Sometimes you just have to cut out the gluten and see what happens.

See my post on the Crohn's board and I hope it helps some.

I have to admit, I never heard of Fleets giving the ulcers, but then I am not a dr. :)  I am curious enough to google and might post on the Crohn's board about it, that is the only prep I can handle for a colonoscopy, and I have to have them pretty often. :)

I hope you get some answers soon.


Diagnosed with Lupus - April 2002
Diagnosed with Crohn's Disease - January 2003 (problems since early 1990)
Fibromyalgia 2005 
Meds:  Lunesta 2mg, Flexeril 10mg as needed, Immuran 100mg, Plaquenil 200mg, Probiotics, Multi-vitamin, fish oil

Veteran Member

Date Joined Dec 2005
Total Posts : 1782
   Posted 4/27/2007 8:57 PM (GMT -7)   
Actually, the fleets can and does give ulcers to some people, due to the harshness of the prep. When I had my colonoscopy last year, I had ulcers at my TI that my doctor thought might have been caused by the fleets - he even stated that while I was in recovery. Said it is very common - that and ulcers from NSAIDS (in my case ibuprofen).

I do know that for me, when I cut out all starchy stuff (including bread, pasta, rice, etc), my bones quit hurting. Unfortunately, that's the stuff you're supposed to eat when you're flaring from IBD.

El - I wish you luck with your tests -- what a merry-go-round, don't you think?

"My "Trifecta" - CD, AS & RA... What a long, strange trip its been!

Co-Moderator Crohn's Forum

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily

Veteran Member

Date Joined Mar 2005
Total Posts : 3148
   Posted 5/2/2007 1:11 PM (GMT -7)   
hey El,
boy oh boy...
i was tested for Celiacs...all clear. i did experiment with eliminating glutein an stuff like ral big difference.
you're right though...could be why Makers did a good job on me.

hang in there el!
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Diclofenac 150mg; Dilaudid 4mg. 

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