Well, it looks like my insurance will cover this. Had a real heart to heart about my issues and the fact that in 1 year I have had little improvement. Of course I am improved in that I am not crawling and I still have a job but that is the steroids doing their job. They rheumy has declared my unresponsive to the Enbrel even though it has only been 15 weeks, but all I have done is gone up on the prednisone and was never able to come off of it. They say that is a failed trial. The next step is a newer medication called Rituxan. It is an infusion that takes all day then it is repeated 14 days later. Supposedly and hopefully then no more infusions of this for 6 months possibly longer and a significant improvement is expected in symptoms. It has to be given in combination with methotrexate which I am already on and a 100mg infusion of methylprednisolone right before hand. It seems to have a pretty high percentage of acute reactions occur with the majority of patients and of those 10% can be severe. That sounds like a lot so as you can tell I am a bit hesitant. So I talked with the doc i had been seeing to be sure we are treating the right condition before I take on such a risk. Then she seemed to think I was questioning her or didn't feel comfortable with her and says that she is going to set me up with the head doc in the practice. I swear it had nothing to do with being uncomfortable or insecure with her choices, I just had questions that I have wanted to have answered you know. So, tomorrow I call to have blood work set up and then I will find out when my appt is with the head honcho. To me I think it would be normal to question things a bit when little headway has been made in 1 years time.. I mean this is my life and disability has no room in the future at least not for the next 30 years.
Any comments, ideas, thoughts, support... Would be great.
dx: Rheumatoid Arthritis. Duration: 10yrs. Dx'ed 2006. Asthma, hypertension, hypothyroid
Meds: Methotrexate 25mg wkly, Prednisone 15mg, Enbrel 50mg wkly, Arava 20mg, Folic Acid, Fish Oils, Ultram 50mg TID, Advair 250/50, Diovan HCT 160mg/25mg QD, Women's One a Day, tylenol PRN.