hi Marzz & welcome to healing well. you'll find a lot of support & info from our little crew here! and of course a daily dose of insight from our Bear.
ok...so your doc has you "on a trial" of prednisone. this is good. it tells the doc 2 things: 1) if you respond positively to the steroids, it most likely means that there is SOMETHING inflammatory going on. and 2) it will tell YOU & the doc if your joints IMPROVE with the use of the steroids.
you may feel a little worse after your complete taper off of the prednisone. for most autoimmune diseases steroids help tremendously, and when we are off of them sometimes we experience a "rebound" pain.
it's extremely important to taper off of them exactly how the doc RX's.
it might be a good idea to keep a daily journal or a few notes on how you're doing on the steroids. joint pain, etc...
the doc at your follow up will ask if things got better during the course of steroids.
the doc will again asses your joints & range of motion and asses your pain level.
if you had any blood work done you'll get those results as well.
a few things might happen:
you might start a course of mantainance steroids (like 10mg of prednisone daily for a month) and then taper from their.
you might be RX an NSAID, a COX2 med, or some arthritis meds like Arthrotec.
this might be the time where the doc also starts you on immunosuppresant therapy like Imuran or 6MP which are pills, or methotrexate (that can come in a shot form as well as pill form).
the 2 of you may talk about Bcell or TNF drug therapy....which are either at home shots you give yourself (a peice of cake so don't be scared!) or given IV in the hospital or an infusion clinic.
the great thing is that there are loads more options NOW than there was 5 & even 10 years ago.
write back soon, take good care & let us know how you're doing!
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg.