Hi, I wrote you a LONG response, and the site/my computer did something and lost it. I will try to quickly sum it up. THANK YOU for your response.
Your site was very good-especially on enteric involvement with joint issues.
I read other sites about AS too, but don't feel my symptoms match up. My Fingers are main point, with pain there always being first to show up, and worst, other joints not as severe (elbows and toes next in severity, with knees, ankles, and wrists following. NO back pain. symmetrical and short periods (6 wks. or so) matches up, but no spinal pain at all. Do your friends with AS have back pain (to get the initial diagnosis) and then also finger pain along with it? I'm trying to figure out if you can have AS without having any spinal symptoms. It appears not.
I will definitely not discount AS-need to keep it in mind. I plan to read much more on it. Had Osteomylitis of Lumbar 3+4 at age 15, and think I would be very sensitive to catch spine pain early on, if from AS or anything else. Have to sleep on soft mattress that cradles lumbar area muscles if I don't want to wake up with pain from that. Use temporpedic and no spine/sacro pain for a number of years now.
-Just seems like RA matches perfectly. Lab tests are not conclusive for diagnosing RA-just confirmation-Only 40% of people who have RA test pos. for RH factor during the first year. And 15-25%+ have RA but never test positive, and some members of gen. pop. are RH pos. with no RA.
I understand IBD makes lining of intest. more permeable, and bacteria gets into bloodstream, causing various joint illnesses, -sometimes RA, sometimes others.
This article (link below) is what originally made me think the UC and finger+joint pain were not related-the UC type joint pain doesn't match up. It's very specific on what type joint pain goes with which Gastro. things. (Also mentions AS) Actually none of the enteric joint pains match up. (can't explain why this thing is switching color-not done on purpose)
(I know this author is not the end-all authority on this stuff) If you come across any other info. relating IBD or UC and joint pain, I would definitely be interested.
I suspect joint pain is not directly related to Colitis, (still researching) but since they are both Autoimmune, one can get the other going. I have come up with this preliminary guess because of this summary -Wed. mild stress-then fingers started hurting (taking 20 mg. Pred. for joints) pain didn't hang around long-thurs. better. Fri. AM joints OK. Fri. New Gastro-got me very stressed,even effecting my sleep that night, then fingers started hurting within 10 min. of leaving Dr., other joints too-more mild than fingers, but definitely there. The pain came out of the blue and seemed to be a response to the stress this Dr. gave me. (not enough time spent, not much info, careless errors, personality conflict-Have appt. with new Gastro. :) Sat. late afternoon started Colazol, (stopping Asacol), Sun. AM, added Colocort enema in addition to regular Rowasa en. each night. Colitis not bad on Sunday, Mon. Colitis GREAT. -(even with a small sample of Caffin. Starbucks coffee with whipped cream and no lactaid pills to go with it. -Usually that would have sent me running.) As Monday goes on, and Colitis is wonderful, fingers start hurting more and more, and by Mon. eve. very bad pain in toe joint, fingers and moderate pain in other joints listed above. Have not had pain like this since starting second round of Pred. BUT, Colitis is great.
If you have any thoughts on this-feel free to express. I know joint pain could also be effected by change in meds, BUT it started before changing meds, and immediately after being stressed.
My side effects of 20mg. of Prednisone (on it for 2 weeks now) are hands shaking sometimes, and trouble sleeping, have not gained weight, but belly fat seems to be shifting to back of arms. (redistribution of fat to upper body predicted with Pred.)
Glad to hear your AS +Crohns can be treated with same meds. Same with UC and RA, but haven't had UC bad enough to be put on those types of meds yet. Have always just taken Asacol + Rowasa at night.
THANK YOU for your response, and please send links to other info. you find on joint pain associated with IBD or UC.