welcome to HW! i wish i had been able to write to you last week! so glad the infusion went alright.
it's funny how each person differs in their experiences...i was so EXCITED i couldn't wait for my 1st remicade treatment.
like yourself, i too was on Enbrel for 2 years & then Humira for 2 years. i started Remicade in October this year.
it's quite common as i found out from a few rheumatologists to have a "plateau" effect w/ enbrel & humira after a few years. seemed like for me...they each worked their best 4 & 5 months into therapy, but then they just stopped working after a good year.
i wish you the very best w/ the Remicade. it's a great medication.
you mentioned fatigue is a big issue for you. i found that since starting remicade the fatigue levels i have haven't been so very severe. it's sort of on a level path now.
the RA i have is really advanced; but i did notice very small improvements in my joints 9 months into treatment.
if you get flushed & a bit ill feeling you can always request the drip to be slowed down. when my 2 nurses let the IV go for just 2 hours i had a bad infusion reaction (and this was like my 25th infusion too). your BP can dip low & feels like your going to either puke or pass out...but slowing or stopping the drip for a few moments helps.
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan; Reglan; LidoDerm; Diazepam; Rozerem; Diclofenac; Celebrex; Dilaudid 4mg; Duragesic 25mcg/hour.