AS and no periods- is it linked pls help

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Regular Member

Date Joined Jan 2007
Total Posts : 90
   Posted 10/15/2007 10:35 AM (GMT -7)   
Hi everyone,
My sister has AS like my Mum and myself and she has also had NO periods for over a year.  She has had it investigated and been on treatments that should have restarted her periods but with no success.  The docs have said she produces no oestrogen and can find no medical reason for this and she is still unable to conceive. This all started before she was diagnosed with AS (which happened very recently) her physiotherapist has said that he thinks the AS is responsible for her lack of periods and says that it is all linked.  I have never heard this before and would like to know if any of you have heard of this or have had similar experiences.  I can't think of any explanation as to how it could be linked but as we all know, AS is a funny old thing.
Any comments gratefully received, i really want to try and find out all i can so i can help her.
Lise :o)
Diagnosed with Crohn's start of 2002. Had 5 months of remission since diagnosis.  Tried lots of different meds, started on infliximab (remicade) Feb 07 had to jump thro hoops here in England to get it . So far so good...hooray!! The light at the end of the tunnel is on and i'm going for it!!
Diagnosed with AS feb 2007 but suffered for years

Veteran Member

Date Joined Dec 2005
Total Posts : 1782
   Posted 10/15/2007 10:56 AM (GMT -7)   
Oh how I wish this were true...

Seriously though, I've had AS for a long time and missing periods is not one of the side effects I have experienced. That is one side effect I have never heard of. A lack of estrogen can be related to many things either physically or even medically. I would suggest that she see a gyn to find out why she is not producing estrogen.

I'm sorry, I'm not sure what a physiotherapist is, but unless he did specific testing relating to female hormones on your sister, he really doesn't have a clue - and to blame it on the AS is just silly. My opinion only. Good luck.
Some days you're the bug, some days you're the windshield

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily

Regular Member

Date Joined Sep 2006
Total Posts : 265
   Posted 10/17/2007 11:28 PM (GMT -7)   
ok.. it's time for her to find a new doctor...

Follicle-stimulating hormone (FSH) and luteinizing hormone (LH) stimulate the production of estrogen in the ovaries. FSH and LH and others are produced in the pituitary. If her estrogen is low they should also find problems with her FSH or LH or in the ovaries themself.

The one thing that is for sure is that it is NOT caused by AS and it will never be caused by AS.

Get her to an endocronoligst who knows what he's doing... :)

Good Luck
Chrons - Aug 06
Hypothyriodism - November 06 
Hypertension - March 07
PCOS - July 07

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