Posted 5/18/2008 8:01 PM (GMT -7)
Hi Ginny, you're on so much blood stuff that I wonder if your blood pressure doesn't have something to do with it. My son has orthostatic low blood pressure and when he puts his head down he gets dizzy. I had a lot of problems with dizziness when they put me on blood pressure medicine and diabetes medicine, and get sudden drops of blood pressure below 80/60 that may last a few hours and make me very dizzy and feel bad.
If you don't have one, you might want to invest in a blood sugar test kit. My high blood pressure was directly linked to my blood sugar, as was my low blood pressure, and the dizzy spells when either high or low. Diabetes makes your blood pressure go all over and your sugar too when it sets in.
You can have low blood sugar or high blood sugar, and I have both, but taking glucophage evened it out to a perfect number and reduced the need for blood pressure medicine. Many doctors miss prediabetes and just slap people on blood presure medicine and then if they do have blood sugar ups and downs, the blood pressure medicine makes the lows really extreme.
Certain brands and types of prednisone have also caused this problem with me, including the ringing and roaring and dizziness and plugged ears feeling. I can only take one kind, and the doc and pharmacist know it. Also, when my glands under my neck swelled, they caused the eustachion tube to the ear to become congested or plugged up somehow and I had to take an antihistamine for a day or so to open it back up.
I think that anyone with lupus or any ai disease should be tested often and thoroughly for prediabetes and diabetes, and if they give us prednisone, they should prescribe a blood sugar testing kit. Mine was $18 dollars and had full instructions, the strips and lancets were more. But I often test my own and my families blood sugars when they feel ill. My son's is frequently low, my boyfriends high but the usually even out with dietary changes. Just knowing this can help you eat better and that may help some.
I would definitely talk with your doc about all that and test your blood pressure often when you feel like that and it would be good if you could test your sugar too, then you would know both.
I hope you feel better and that you get it straightened out. The swelling under the throat and in salivary glands, the parotids especially and the submandibulars can cause some changes with the ear, just like in strep throat and other throat infections. Also, I get dizziness with the arthritis in my neck and found rolling up a hand towel and wrapping it around my neck for a brace to hold my head up helps sometimes.
I hope you feel better and pray that you get answers and relief soon and that it is nothing serious.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn