Have you been to an ophthalmologist to have your dry eyes checked? I have punctal plugs in my tear ducts and I use Restasis twice daily, both of which have helped immensely with my dryness. You also might want to ask your rheumy if you can take Evoxac or Salagen for the dry mouth. I don't take either of these myself, but I've heard from other Sjogren's sufferers that they sometimes help.
I know what you mean about
the joint pain and the fatigue. For quite a while before I was diagnosed I had a lot of trouble getting out of bed every day and I would just get back in it as soon as I got home.
I think as long as your rheumy continues to monitor your symptoms and adjusts your treatment you should be in good hands. It seems lately my meds are changed almost every time I visit my rheumy, and I go once a month!
Best of luck
29 year old female (full-time accountant/part-time student)
Dx'd 2009: Primary Sjogren's Syndrome, distal RTA, bilateral nephrocalcinosis (calcium-oxalate), chronic interstitial nephritis, Stage 3 CKD, Raynaud's Phenomenon
Rx: Cellcept 1000mg 2x/d, Plaquenil 200mg 2x/d, Prednisone 15mg/d (tapering), Urocit-K 3mEq 3x/d, hydrochlorothiazide 12.5mg/d, potassium chloride 20mEq/d, Restasis, Numoisyn, Nystatin