Damaged Nerve by Lip Biopsy

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New Member

Date Joined Jan 2012
Total Posts : 4
   Posted 4/25/2012 5:23 PM (GMT -7)   
Just wanted to share my awful experience with Lip Biopsy and wondered if anyone else out there is suffering same.  I had the biopsy 8 mos. or so ago - my Rheumy referred me to ENT to do biopsy who supposedly had done procedure several times.  She did the biopsy and it was extremely painful, number one, and number two she failed to tell me that she had cut a nerve in my lip.  My bottom lip is now permanently numb and tinglly, which is really uncomfortable.  The Rheumy is the one that told me that this is what happened, not the ENT.  I'm really mad, because I cannot even kiss my Husband, as it is painful.  Has anyone had this? And what do you do?  I am tempted to sue this Doc for malpractice.  I am hoping this will not be permanent.  Not only are my lips SO dry from the SJogrens, now I have to deal with this problem too.  It may not sound too serious, but it is seriously annoying and bothers me every day.  Thanks, responses much appreciated. eyes

New Member

Date Joined Jan 2012
Total Posts : 4
   Posted 4/25/2012 5:28 PM (GMT -7)   
Just noticed I said 8 mos - must seem like 8 mos. was 3 mos. according to my first post........still way too long to have all this numness and tingling.

Betsey Ross
Veteran Member

Date Joined Mar 2011
Total Posts : 1056
   Posted 4/28/2012 6:39 PM (GMT -7)   
Sometimes numbness is caused by the needle of the the injection nicking the nerve. It takes many months to decrease the pain and tingling. Light massage of the area will stimulate blood flow in the area and increase the healing properties.

I use to work in a dental office for 37 years chairside assistant. I loved it but as my doctors aged, they sold their practice and the new doctor woulnt hire me because I knew to much and he was unwilling to pay my salary. So I moved on to another office.

Keep us posted on this.

Age to a woman is like krypronite to Superman.

Forum Moderator

Date Joined May 2005
Total Posts : 7513
   Posted 4/28/2012 8:21 PM (GMT -7)   
We've had other reports like this about the lip biopsy's...they don't seem to heal as well as one might hope. Unfortunately, I don't know of any remedy other than time.

Can you share with us whether this helped with your diagnosis and whether the treatment plan changed any as a result of the biopsy?

Hope you feel better soon,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

New Member

Date Joined Jan 2012
Total Posts : 4
   Posted 5/1/2012 6:51 PM (GMT -7)   
Thank you for your responses.  I will try the massage of the lip.  Yes,  I do believe that the nerve was nicked, as my Rheumatologist said as much - but the ENT would not say that.  Sorry to hear about your job, Betsey.  That sounds very unfair - we need well informed people out there working with Doctors & Dentists!  Unfortunatelly it seems to be more about the money!
And no, it did not change my course of trreatment whatsoever.  My biopsy came back, according to the ENT as showing alot of inflammation but she felt that she did not get enough tissue to cofirm the dx.  The Rheumy said I do indeed have Sjogrens based on the positive RA factor and other blood work, dryness, other symptoms, etc.
I would absolutely not reccommend a lip biopsy.  It was painful and I feel that she stopped when she realized that she had damaged the nerve, therefore not confirming anything except that she was inept at her job.
Thanks for listening!

C.A. Thompson
New Member

Date Joined Jul 2012
Total Posts : 1
   Posted 7/7/2012 2:37 PM (GMT -7)   
I too, had a lip biopsy 3 months ago to rule out sjogren's. My ENT did the biopsy. What a horrible experience ! My bottom lip has been totally numb since day 1 of the surgery. Also, my bottom lip grew to my gum due to the stitches. I went to my periodontist 4 weeks ago and had to have this area clipped and stitched again. This is a very painful surgery due to the healing. I told my periodontist about the numbness and tingling all the time. He told me the nerve had been damaged during the first surgery by the ENT. He also, to give it a little time to see if it "might" get better. But after 3 months, no change. Also it hurts terribly when I move my bottom lip to the side ! I plan to make an appointment with a neurologist to see if anything can be done ! This has changed my whole life. It is there every minute of the day and is so annoying not to be able to feel my lip. I have been massaging my lip all the time, but to no avail has anything changed.
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