Posted 5/20/2015 6:19 AM (GMT -7)
Diana, I replied to your reply on the lip biopsy and then saw this. I am so glad you found a good rheumatologist. It's quite the journey, isn't it??? Whew!!!!!! I had seen a few rheumies, they all thought something was wrong, but didn't know what. A Dr. at Mayo clinic thought I had RA and my x rays just turned positive for that too-:)
I think everyone is different with medications. They often start you on plaquenil. There is a rare side effect, very rare of some eye damage, so get your eyes checked at least once a year. It's a good medication but takes a long time for you to get results. For me, it happened pretty quickly though, so that was a blessing. It helps the fatigue and joint pain. They sometimes put you on a med like Exovac for the dryness. I have a script and will start taking that tonight. I highly recommend if you still have your teeth to get on a prescription toothpaste with high fluoride to keep from getting so many cavities, root canals ets..... My dentist did that for me and it was a blessing!
Some people with sjogrens are sun sensitive. You might know by now if that is you. It can cause a flare.
I've had costochondritis that caused chest pain. Did you get your chest pain checked out with your Dr?
Oh, I also use saline nasal spray for the dry nose.
Hope this helps.
Sjogrens syndrome 2/15 via lip biopsy: RA 3/15 seronegative, positive x rays
colitis-resection 11/10, hashimoto's thyroiditis, type 2 diabetes, morphea, GERD
Meds: plaquenil, synthroid, metformin, nexium, restasis, estrogen patch, prometrium, VSL #3, evening primrose oil, alpha lipoic acid.