Potential Sjogren's + symptoms help

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New Member

Date Joined Sep 2016
Total Posts : 2
   Posted 9/27/2016 6:53 PM (GMT -7)   
I am 24 years old and earlier this year in May my GI doctor ran a test and in that test I tested positive for ANA and my SSA levels were at an 8 and my SSB levels were at a 6.5. So he recommended that I go see a rheumatologist. Because he thought that I either had sjogren's or lupus. I could get an appointment until September.

However during that time and even before that I have been experiencing random fatigue, joint and muscle pain, burning sensation in eyes, dry eyes, dry mouth (cotton mouth feeling) and burning sensation in skin (all over, but it feels like it's burning from the inside of my skin not the surface). When the burning gets intense I have a big decrease in energy and an increase in joint pain.

I saw a rheumatologist earlier this month and she said that she thinks that it is sjogren's. She had me take another blood test and a chest x-ray. I also have to do a mouth biopsy (which I have not done yet)

What I really need help with is relief from my symptoms. If anybody has any tips that would be so helpful. I have been using eye drops for my eyes but they are not that effective. My rheumatologist wasn't too helpful. She said eye drops for eyes, lemon drops for the dry mouth and keep active and exercise for the fatigue, joint pain and burning skin feeling. Or if anyone thinks that it is something else and not sjogren's. Any help would be greatly appreciated.

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Date Joined May 2005
Total Posts : 7514
   Posted 9/28/2016 6:07 AM (GMT -7)   
Welcome to HW, Crimson Eagle -

Sorry you are experiencing these symptoms.

For dry eyes, yes, eye drops, but make sure they are LUBRICATING drops and that they do NOT contain any medications or preservatives. Good brands are Tears Naturale and GenTeal. For dry mouth try some of the Biotene products - they have mouthwash, spray, gum, etc. NOT lemon drops, both sugar and artificial sweeteners are hard on the teeth!

I personally would avoid the mouth biopsy - use the search feature above and you can find members accounts who have done that. I think the risk of permanent nerve damage (even in such a small spot) is greater than the benefit of getting a confirmed diagnosis, since it's quite possible to be treated without this information.

Burning sensation in eyes & skin -- sorry, no suggestions, maybe Prednisone would help, as this may be inflammation. Fatigue, joint & muscle pain - I'm surprised the rheumy didn't try you on Plaquenil (inhibits disease progression) and/or Prednisone (treats inflammation). She may be holding off on these while waiting for blood test results (inflammation markers).

Do you have a follow-up appointment with the rheumy?
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
"Life is far too important to be taken seriously." - Oscar Wilde

New Member

Date Joined Sep 2016
Total Posts : 2
   Posted 9/28/2016 9:30 AM (GMT -7)   
Thanks for you response! I have actually heard that (potential nerve damage) from the biopsy. But I will definitely research it a little more before making a decision on it. I have my follow up in December. But my rheumy said that she would let me know what the result were earlier than that if they indicated sjogren's.
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