Posted 10/10/2016 2:59 PM (GMT -6)
Like many of you, I feel like I have been through hell and back over the last 6 months in an attempt to find a diagnosis for the laundry list of symptoms I have been experiencing. I have not been diagnosed with Sjogrens but I am fairly certain that I have this disease or something similar to it. I have an appointment to see a rheumatologist at the end of the month.
For me, it all started when I noticed two swollen glands (lymph nodes) on my neck. Same day I noticed what felt like a little puffed up piece of skin on my lower inner gum right below my front bottom teeth. I saw my doctor and he checked the glands, said they were small and nothing to worry about. As months went on, the glands remained and a wave of other symptoms rolled in. I began feeling extremely dizzy, I developed symptoms of chronic sinusitis, IBS, and acid reflux. I was burping CONSTANTLY. These symptoms would kind of come and go over the following months. I noticed more little puffed up areas on the floor of my mouth, and dryness as well. Sometimes when I would wake up I would notice a painful cut on the piece of tissue that connects my tongue to the floor of my mouth due to the dryness. I saw my doctor a handful of times with these issues and he always told me that everything seemed fine and sent me on my way. One of the times I saw him I literally broke down crying in frustration and he ended up prescribing me to an anti-depressant. Eventually he would refer me to an ENT. The ENT tested for allergies which came back negative. He checked my lymph nodes and said they do not feel "scary" to him, and he sent me on my way. It is going on 6 months since I first began to feel unwell. I still have swollen lymph nodes on my neck, the floor of my mouth has swelling in sublingual and submandibular gland areas, As well as other smaller swollen or lumpy areas. I am still getting waves of dizziness, tiredness, sinusitis, IBS, acid reflux, and occasionally yeast infections. I am a 24-year old female. I have not been diagnosed with sjogrens, but based off of my symptoms I feel as though it is a real possibility that I may have it. Please let me know if you have been diagnosed with sjogrens and can relate to any of my symptoms above.
The past several months have been extremely difficult and whatever disease I have is certainly effecting my quality of life. Any advice or help that you may be able to offer is appreciated.