am i jumping to conclusions after a few days of dry mouth? please read me.

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waterbee
Regular Member


Date Joined Aug 2016
Total Posts : 104
   Posted 1/20/2017 7:47 AM (GMT -7)   
I randomly developed a dry mouth 4 days ago. i happen just like a switch, one moment my mouth was fine then it was suddenly very dry! my throat feels like i have a virus but im not coughing. (my sinuses are stuffy but not blocked) im eating ok, though i can feel textures are different.

i developed sevear dry eye (tbut 2) 2 years ago. (i feel i may have been bitten by a tic a few months before this so always assumed it was related to lyme, especially since ive made good progress with improving it after IV treatments, though my tbh is now 7 so not great) they found i have a water deficiency in my eyes, also all my glands are clear, but the oil in there is very slight, just not good enough quality to stop my eyes from being dry.

i had tests for sjogrens when my eye issues started, all the blood tests and saw a rheumatologist, his words where "i can tell you with 100% certainty you do not have sjogrens. your dry eye is due to long term use of an anti depressant known for causing this issue, all your tests are perfect. you may have some chronic fatigue."

i have no idea where these dry throat and mouth issues have come from unless its related?.

i am seeing a infectious disease specialist who tested me and got positive blood results for me for lyme disease and i have a chronic active EBV infection (which is known for causing eye issues too, and can sometimes cause sore throat flare ups but that aspect would def be new to me) im treatment, antie virals and lots of abx and herbs, vitamins and rest.

Post Edited (waterbee) : 1/29/2017 2:18:02 PM (GMT-7)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7519
   Posted 1/20/2017 9:37 AM (GMT -7)   
I think you are probably right, you are getting ahead of yourself. Just a month ago I had a terrible dry mouth and laryngitis - turned out it was just my specific version of some virus that was going around. Others had coughing & nasal drainage but I didn't.

I suspect you are having the same sort of thing happening. I would recommend drinking plenty of water, maybe some honey or throat lozenges, salt water gargle, Vitamin C, and wait it out. If you still have trouble in a week with no change, visit your Dr.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

waterbee
Regular Member


Date Joined Aug 2016
Total Posts : 104
   Posted 1/20/2017 10:32 AM (GMT -7)   
i did notice some a few lumps at the back of my tongue and then i saw my tongue is slightly swollen.
thank you, i appreciate your reply smile
Lyme and EBV. tick bite Nov 2014. misdiagnosed. unable to walk by 2015.
IV treatment started 2016 + Amoxicillin, tinidazole. + antivirals.

Life4Me
New Member


Date Joined Apr 2017
Total Posts : 8
   Posted 4/16/2017 12:52 PM (GMT -7)   
To determine Sjogrens as a definite, a lip biopsy is done. Often it does not show up in blood work. I walked around with it for probably 4 years until I was diagnosed. I was given every diagnosis in the books, until they finally found the core of the problem.. My best to you. Keep us posted on how you are doing and if you are well. Feel better.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7519
   Posted 4/16/2017 4:27 PM (GMT -7)   
A lip biopsy can only show Sjogren's IF, and ONLY IF, you have Sjogren's active in your mouth. Sjogren's can present in eyes, ears, nasal passages, mouth, and other mucus membranes, including those between internal organs. All of these other presentations can exist and you could still get a negative lip biopsy.

Sjogren's treatments are quite often applied without a lip biopsy, and from the results various members have had over the years I would NOT recommend a biopsy. People end up with permanent numb spots, or sometimes with permanently inflamed nerves at the biopsy site.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Kit04
New Member


Date Joined Sep 2017
Total Posts : 3
   Posted 9/11/2017 7:11 PM (GMT -7)   
I had numerous blood tests and everything showed negative but ENT said your glands are terribly swollen. Mind you, I had seen him a few times and still swollen. A lip biopsy confirmed sjogrens. Sure, I had numbness for about 6 weeks, but I'm fine now. I am just thankful to have a name for it. Of course, don't rush into lip biopsy, but don't say no to it either. Do what's best for you.

I really went to ENT cuz I was constantly smelling smoke Turns out that is related to phantom smells not Sjogren's. He feels smoke smell will totally go away after a year or so. Now it is less than it was before. So flukey things happen.
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