Have you consulted with your rheumatologist about
the phantom smell? I wonder if your Sjogren's is causing some inflammation that isn't being controlled. What are your other symptoms? What medications/treatments are in play? Remember, nothing happens by itself, the collection of symptoms is what really tells us what is going on with the disease.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde