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SomeonesMom
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Date Joined Nov 2017
Total Posts : 3
   Posted 11/12/2017 7:11 PM (GMT -7)   
Hello all,

I have been reading posts here but never posted as I had nothing to offer really until now. I've appreciated the advice and tips found here and the supportive environment. This post mostly may be helpful to those who have not yet gotten the diagnosis of SS but are exhibiting symptoms.

Firstly, it is not myself, but my daughter who has been suffering, for about 4 - 5 years, she is just turning 25. She has had severe dry eyes along with dry mouth and throat, painfully dry, and has had few full night's sleep in years from always waking in pain. Nothing she tried would give her relief for more than a few hours at most.

After all sorts of doctors and tests, there was never any conclusion to the cause, but she was told repeatedly it looked like Sjorgrens or Lupus, despite the lack of any other symptoms or indications on the blood tests of which there were many. She was encouraged to see a rheumy, yet had the toughest time getting a referral. It's a long long story all the docs, tests, and things tried, medical and natural, so for brevity's sake I will skip the whole tumultuous tale.

While waiting for the referral to the rheumy to come through, we started looking at the hormone question again more closely, despite the dismissal from the endocrinologist. It occurred to me since testosterone was successful with dry eye in older women, there could be something to the hormones, and she has a history of difficult menses and indications of PCOS. Also dry eye is common in pregnancy as well as on birth control pills. Since testosterone is so difficult to obtain for women, I thought why not try some progesterone cream, so she did. Why not indeed, she tried so many things already to no avail.

Oh my. Right away she noted an increase in saliva and was able to sleep through the night. Still needed morning eye drops but none throughout the day. This continued to improve. Now that it has been a full month, it clearly has been the solution for her. It makes perfect sense now after thinking it through, as during ovulation, the body produces moisture to hang on to the egg, and progesterone becomes the dominant hormone at this time. With just a daily dose of progesterone cream, her moisture has returned, like 95%. She was able to stop it for a week too, as it's best to try and mimic a natural cycle, and had no resurgence of dryness that week. Really it has been miraculous!

After years of suffering, including the terrible financial drain, all it took was a cheap bottle of natural progesterone cream. That not one doctor had thought to consider a hormonal cause is shocking really. The endocrinologist and the opthamologist surely should have been aware of the connection and had given it some consideration. There are some scientific studies published years ago. Really wish we'd had come upon the solution much sooner as real damage was occurring with dental issues and her meibomian glands. I will refrain from ranting, but these docs could definitely use some education so perhaps they can help the next person. This "no cause, no cure" message the doctors were expressing was just unacceptable. She was so exhausted and worn down though, she was ready to give up.

Anyway, I wanted to reach out here, as if this could help even just one person it is certainly worth mentioning. Not going to be a solution for everyone of course, many of you have the definitive diagnosis which she had not obtained at this point. All we had was the doc's best guess and they kept pointing to autoimmune. Clearly it's been hormone's all along for her and relief found sitting on a shelf at the store.

I pray for all of you here struggling with this condition and hope that you find relief. Leave no stone unturned in your journey. As they say, it's always found in the last place you look.

SomeonesMom
New Member


Date Joined Nov 2017
Total Posts : 3
   Posted 11/19/2017 7:11 PM (GMT -7)   
I just wanted to add something here - some science to show there is more evidence than just my little story of Progesterone Cream being effective for dry eye.
Also just to mention .. someone with Sjogren's diagnosis reported they too experienced increased moisture when using natural progesterone cream.
So, diagnosis or not - there is a fair chance this may help.

The Use of Progesterone Cream to Treat Dry Eye
http://iovs.arvojournals.org/article.aspx?articleid=2382585

"It is worth noting that progesterone cream was able to relieve symptoms in a larger population of dry eye sufferers than testosterone. Testosterone cream benefits are mainly limited to menopausal females."

prybar
New Member


Date Joined Nov 2017
Total Posts : 1
   Posted 11/19/2017 8:02 PM (GMT -7)   
I am not sure if I have Dry Mouth or Sjogren's....but this is making my life miserable. I just retired(age 66) and have been putting up with this for two years. I have lost most taste and my sense of smell is much weaker than it used to be. I get run-around from my doctor who has had me try almost everything with no help. Do you think this progesterone could help me. Do I need a prescription? This has really turned into a quality of life issue for me and I don't think the medical profession takes this disease seriously enough.

SomeonesMom
New Member


Date Joined Nov 2017
Total Posts : 3
   Posted 11/19/2017 9:00 PM (GMT -7)   
Natural progesterone cream is available over the counter at many stores here, we picked it up at Whole Foods. Always easy to purchase online too. Commonly used daily by menopausal women to relieve hot flashes.

I feel your pain.The doctors ran us around too, for years.
You could request the doc to run hormone tests if you wanted to know your levels to see for sure which hormone you are in need of. Had they tested my daughter she would have been spared years of agony.

Older women and men can often benefit from testosterone - but that requires prescription.

But yes natural progesterone cream is easily obtained, no prescription required. Quite possibly it can help you. It's not overly expensive either.

Just be sure to get a type that is natural, very important. Also paraben free.

Sorry you are suffering. This dryness is a misery. I cannot guarantee this will work for you but it sure is worth a try. If not, ask the doctor to test your hormones or prescribe a testosterone gel.
Good luck to you, hope you find relief!
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