Would either of these point to Sjorgens

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New Member

Date Joined Dec 2017
Total Posts : 3
   Posted 12/29/2017 11:57 PM (GMT -6)   
Hello, my neurologist sent me for blood work for Sjorgens and Lyme Disease. The only things that came back was a high Alpha A 1 Globulin and a reactive 41 IGG band.

He sent me because he found my feet and brain weren't communicating like they should, also off balance when I walk and/or stand. I have had dry mouth, nose, eyes for a few years now, my eyes most of the time feel tired and burn, I was tested for swallowing issues (nothing found), my thoughts don't seem very clear at times, word sometimes come out wrong, forgetful/foggy brain, forget things all the time, joint pain, tired all the time, very off balance (I have fallen a couple times! I don't see him till Feb, I do see my primary in January so I'm gonna ask him and ask for a referral to a rheumatoid dr when I see him. I would just like answers as to why I feel this way.

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Date Joined May 2005
Total Posts : 7674
   Posted 12/30/2017 12:04 PM (GMT -6)   
As far as I know, neither of those is associated with Sjogren's. Here is a great discussion of how Sjogren's is diagnosed. www.sjogrens.org/home/about-sjogrens/diagnosis

You are right, a rheumatologist would be the right Dr to investigate a possible Sjogren's diagnosis.

Meanwhile, you might try the Biotene line of products for mouth issues, and use an eye lubricant, such as Tears NATURALE-II, to keep your eyes moist. You want a NON-medicated eye drop that says lubricant on the label; not anything for red eye.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
"Life is far too important to be taken seriously." - Oscar Wilde

New Member

Date Joined Dec 2017
Total Posts : 3
   Posted 12/30/2017 3:49 PM (GMT -6)   
Thank you!

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Date Joined May 2014
Total Posts : 30400
   Posted 2/1/2018 1:31 PM (GMT -6)   
Tif - you had posted in the lyme forum. I did reply...but not sure if you read it.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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