Do nasal antibiotics help Sjogren's?

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HabsHockeyFan
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Date Joined Jan 2006
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   Posted 3/29/2018 7:13 AM (GMT -6)   
Hi! i used to hang around on the Crohn's board. I am trying to resolve some long term issues and a lot of my research points me to Sjogren's. I was dx'd with Crohns back in 1990 and am on very limited meds. Within the the last ten years, new issues have showed up that aren't all CD related. I have the joint issues....but I have also always had wacky skin issues. I was diagnosed with small fiber neuropathy a couple of years ago. I have always had bad teeth issues and what seems like fluid in my ears and a permanent itchy nose and eyes.
A dermatologist gave me a higher dose antibiotic to put in my nose 1 week a month when staph infections kept showing up. Strangely, that antibiotic fixed the jaw pain, itchy nose, vision blurry/itchy, fluid in ear feeling & some joint aches too.
So....I have rambled. I don't know if Sjogren's is a dx for me - I hate to ask for a test. I wanted to know...do any of you use antibiotics and see symptom relief?

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 3/29/2018 3:02 PM (GMT -6)   
Antibiotics can certainly provide symptom relieve for symptoms caused by biological problems. Sjogren's is an auto-immune disease and symptoms will most likely NOT be decreased by using antibiotics. Since you seem to have relief via the use of antibiotics, it's most likely you don't have Sjogren's.

If you are concerned about Sjogren's, best to see a rheumatologist (the masters of the auto-immune world; Sjogren's is an auto-immune disease) for a full workup.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

HabsHockeyFan
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Date Joined Jan 2006
Total Posts : 3150
   Posted 3/30/2018 7:21 AM (GMT -6)   
Thanks Lynn...when I saw a pictorial description of the facial areas Sjogren's affected, it matched mine and then the commentary on tongue issues. I have been searching for fluid in ear issues/jaw pain for 7+ years and my tongue pain for at least 5. You know...that hoping for an answer thing. I know that some of my Crohn's issues calm down when I'm on antibiotics so always hoping I can find an answer.....tired of my tongue burning.

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 3/30/2018 8:18 AM (GMT -6)   
Have you tried Biotene products? They have a mouthwash that might help your tongue issues.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

HabsHockeyFan
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Date Joined Jan 2006
Total Posts : 3150
   Posted 4/3/2018 7:18 AM (GMT -6)   
Thanks Lynn...yes I have tried biotene, oral antibiotics, no antibiotics, different toothpastes, different foods, etc. My dentist has given me different mouthwashes and rinses. So far, the antibiotics are the only thing that changes the tongue. I even asked a friend who lost her saliva glands due to radiation tx and tried things she uses for moisture etc.
I'll keep searching.....
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