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Extremely dry--can't find a solution

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Sjogren's Syndrome
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Luvzminis
Veteran Member
Joined : Apr 2008
Posts : 2961
Posted 9/20/2022 5:39 PM (GMT -8)
I'm 65 and generally on the Fibromyalgia forum.

For the past couple of years, I've had extreme dryness, especially in the vaginal and rectal areas, as well as dry eyes. I use Systane for the dry eyes and it helps quite a lot, though that moisture doesn't seem to last too long.

My "big" problem area is the vaginal area, and the rectal area can also feel quite uncomfortable and even sting. I do take fish oil and evening primrose oil daily and drink lots of fluids. I'm prone to UTIs due to some bladder prolapse.
Because of the prolapse, I need to wear a sling, especially if I'm out and about. I also wear a lighter one (homemade) which is "breathable" (cotton)--the sling is nylon, I believe. Due to this, I believe any moisture gets trapped and with the prolapse, likely may cause the UTIs. I don't want to have surgery for the prolapse, but am wondering if a pessary might help---or, because of the dryness, cause more irritation(?)

I'm currently working with my doctor who is very knowledgeable on "female issues." She prescribed a cream for the rectal area and a small amount of (oral) estradiol daily. The cream doesn't seem to do much. The estrogen hasn't done much either--only seems to cause digestive issues. I did switch to an OTC estrogen cream recently which I can use on inner thighs or arms or the stomach area. I need to give it a little more time to see how it goes.

I recheck my recent UTI and also the estrogen in early October. (I had been taking Cipro for the UTI but finished the 5-day course). I'm hoping to switch to a better estrogen cream, rather than something oral or OTC (any suggestions welcome!). But the estriol cream I'm using temporarily, I hope, will at least make things a bit more comfortable. (Yes, I did discontinue the oral estrogen---tried it a few weeks apart but always got the stomach issues each time).

I guess I'm posting here because all this extreme dryness makes me wonder occasionally if I could have Sjogren's. Do my symptoms sound familiar to anyone? If you have any tips to solve any of these issues, I'm all ears! smile
Thank you.
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Lynnwood
Forum Moderator
Joined : May 2005
Posts : 8110
Posted 9/21/2022 7:46 AM (GMT -8)
Yes, I agree that this could be Sjogren's Syndrome. It is evidenced by dry mucus membranes, which certainly includes the vagina and anus. It is an autoimmune disease, which is diagnosed and treated by a rheumatologist.

Here is a good website that talks about it in more detail. (It doesn't cause UTIs, but causes things that are often incorrectly dx as UTIs!)

https://www.mayoclinic.org/diseases-conditions/sjogrens-syndrome/symptoms-causes/syc-20353216

https://www.mayoclinic.org/diseases-conditions/sjogrens-syndrome/expert-answers/sjogrens-syndrome/faq-20058078

Best wishes!
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Luvzminis
Veteran Member
Joined : Apr 2008
Posts : 2961
Posted 9/23/2022 7:55 PM (GMT -8)
Thanks so much for that info, Lynnwood!
How interesting re things incorrectly diagnosed as UTIs--wow, who knew? It's definitely one more thing I'll bring up to my doctor at the next visit.

I surely appreciate your help. Hopefully I'll be getting some more answers soon. Some days are better than others, so that's a plus.

Have a great weekend!
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