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Regular Member

Date Joined Sep 2007
Total Posts : 133
   Posted 3/27/2008 6:25 PM (GMT -7)   
Well finally after 5 days I got my lithium test results back and my doctor called me and said it was 1.5.  Not too bad, but watch it and cut down to 1 pill for a couple days.  I hope this will halp the shaking, but it really is on and of and you would think it would be all the time if it was from the lithium.  I know we will not do another blood test anytime soon.  He just never seems to need one.  This is only my second since I started.  Anyway, just wanted to keep you updated. Have a good day.

Veteran Member

Date Joined Feb 2003
Total Posts : 1441
   Posted 3/28/2008 7:34 AM (GMT -7)   

Hi Mr. T,

Ahhh,  I was waiting to hear your update. I know nothing about lithium, but it too would seem to me that if it was due to the lithium, I would suspect that the shakiness would be constant. But I am not a doctor. It's weird that he told you to cut back for only a couple of days. What happens when you return to your normal dosage?...will the shakies come back?

Well, continue to keep an eye on it. If things don't seem to get better, please continue to persist. The only thing that saved my husband from having a heart attack was his persistance that something was not right...he knew his own body. Even his cardiologist told him everything was fine after administering a few tests.  Thank goodness he went back to his PCP and he was the one believe it or not that saw it as a HUGE issue.

My husband ended up having a stent put into his L-Main and was saved from a second Double by-pass! His PCP and NEW cardiologist both said, he would not be alive today if my husband had not listened to his own body.

So do what you have to do Mr. T, until you feel satisfied that all of your bases have been covered.

Good Luck!

Veteran Member

Date Joined May 2007
Total Posts : 3715
   Posted 3/28/2008 8:32 AM (GMT -7)   
Well, I'm glad you're not toxic. That would be worse. But it does leave the question of the shaking. I still wonder if it's not the other pill you're taking.
Co-Moderator, Bipolar Forum
Bipolar II

Regular Member

Date Joined May 2006
Total Posts : 35
   Posted 3/28/2008 12:45 PM (GMT -7)   
Mr. T, I would strongly suggest that you get a second opinion from another doctor.  Your level of 1.5 is just at the toxicity level, and cutting down for a few days still leaves you in danger.  Your doctor should have investigated the reason why your level got so high when you were taking the same dose.  Also, you should have blood tests done regularly.
I was on lithium for 20 years, developed toxicity, and lost 60% of my kidney function.  I had very similar symptoms to you when I was toxic, which is why I am very concerned that you're not getting the appropriate care right now. 
If medical care is difficult to find where you live, then I think you should persist even if you have to go to another area and even if it costs more.  You have to help yourself if your doctor won't.  I have learned this myself from bitter experience.

Regular Member

Date Joined Sep 2007
Total Posts : 133
   Posted 3/28/2008 6:10 PM (GMT -7)   

Thank you everyone for your words of encouragement and support.  I am still shaky same as before, but not as bad as a couple weeks ago when it was out of control.  I still don't know if it is the lithium and don't know why I suddenly became on the toxic borderline.  It may be the new medicine.  I really don't know.  I have an appointment next week so I guess I will see if my doctor wants to do any other tests or just leave it and see how it goes. 

I wish I had another option or a doctor for a second opinion, but we just don't have any.  If it continues or gets worse and my doctor here doesn't do anything or what I believe should be done I will have to travel to Bangkok.  I would dread that, but if I have to do it I will.

How long should I wait this out before I ask for tests?  Any idea what tests I should ask for?  Well, Thanks for all your support.  Have a great day, and healthy wishes to all of you.

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