Serafena, I had to have a colectomy in August 2007 for colonic inertia and severe constipation. It worked until this spring and I had to have surgery for an ileostomy in May. It didn't start working and I had to have emergency surgery in June. When I woke up, I had a tube in my abdomen leading to a bag velcroed to my leg, 3 JP drains, and a feeding tube. I was in the hospital for 52 days, had to have 3 blood transfusions, a pic line for nourishment, a nasogastric tube for nausea, and a urinary tract infection from the catheter.
I got 2 jp drains taken out in the hospital, but came home with 1 jp drain and the feeding tube, which I had thru September when I went back to work part-time. I tried working full-time last month, but it didn't work because my stamina is terrible, so I'm back to working part-time. However, I am really lucky and am getting paid for full-time because of our agency's sick leave pool.
Now, I have to have an additional surgery in June of this coming year, to give me a traditional ileostomy; a bag on my abdomen. I live in Florida and cannot wear shorts, short skirts, or pants. I have to wear long skirts to cover up my leg bag. The worst part is that my sutures come out of my abdomen and tube about every 2 weeks and I have to have them resutured.
Also, my tube gets obstructed very easily and my husband has to help me flush it out. He also helps me change my gauze bandages. He has been amazingly supportive in every way possible, but I am just discouraged and June seems a long way away. Plus, I was tramatized in the hospital this summer, by everything that was done to me and the length of time that I had to stay. I don't understand why all of this has had to happen.
My counselor has been very supportive, too. He came to the hospital twice and helped me. He is seeing me weekly now, and hoping that I don't dip too low. I have a history of having mixed states or sliding into a deep depression. It takes me a very long time to come out of the depressions and we are trying very hard to keep me from going there.
I am very grateful for your caring and others on this board. It's a good place to vent and realize that you're not alone.