my heart goes out to you. i would rather be condemned to hell for all eternity than to see our daughter, grandkids, or greatgrandkids suffer in any way. i know it has to hurt.
i have been fighting the devils of mental illness all of my life. as a teenager (that was about
half a centuy ago
) i was diagnosed with depression. those were the very early days of mental health, so differentiations were few. in my 20s, after a very messy divorce, i was hospitalized for a month and, again, they called it depression. then in my 40s i got pretty bad mentally and again, the pdoc called it depression. finally, in my 50s, after a botched epidural steroid injection, i was in so much pain that i attempted suicide by taking all of my pain pills at once. fortunately my wife stopped me before i got too many down. i saw a pdoc who first diagnosed me with schizophrenia. he asked if i heard voices. i am a jewish spiritualist - of course i hear voices! it is part of my belief system! then he changed the diagnosis to schizoaffective. i asked why and he said, after brain scans, mris, etc, that my brain shows no signs of schophrenia, such as shinking. i lived with this diagnosis for about
a month, then started researching it on the web. the symptoms simply didn't match. i then got together with my psychologist and we went over the dsm. based on my symptoms, we decided that bipolar was a more accurate dx.
what i am trying to say is that drs simply don't know. they give educated guesses and, i feel, sometimes just give a dx in order to satisfy insurance cos. the other thing is that, i feel, there is simply a dx du jour, which may or may not bear any relationship with a patient's symptoms.
don't know if this is the kind of feedback you wanted, but i do hope it helps.