Hi all...I just found this website and have tons of questions...this is for my 6 yr old son, so I guess my first question is should I be coming here with my questions? Does anyone know of a bipolar forum for parents of bipolar children?
Next, I want to tell you a little history...my son was diagnosed with something called Mesial Temporal Sclerosis (scarring in the temporal lobe) when he was 2...this causes him to have seizures, so he takes medication for the seizures...we have been seeing neurologists, psychiatrists, psychologists, therapists, etc since this time...he was recently diagnosed with autism too...this was by the psychologist...his psychiatrist talks to me all the time about bipolar in young children, she has referred many books for me to read about bipolar, but has not officially diagnosed him as bipolar...she tells me she wants to treat symptoms, not labels!?!?
So now we are to the medications...he has failed tegretol and carbatrol for seizures...we are now on depakote with some seizure control...the docs have increased his depakote levels used to treat bipolar with no effect, so they lowered the dosage back down to seizure control level...they have given him ritalin and geodon, with no effect on his behavior, in fact he always seems to get worse from new meds...he has also failed klonopin, which they were using for seizure control, but had such horrible behavior side effects, they stopped that...we are now supposed to try zyprexa.
If you are still with me, lol, I guess I am wondering which way to turn here...I read books about bipolar and sometimes I think that sounds like Mason and other times I think there is noway that is my son, he doesn't fit the criteria...the same with his autism...I've been to autism forums and epilepsy forums, and the support there is great, but I just can't seem to find anyone that sounds like my son...it's hard to ask advice when there isn't anyone that truly understands what is going on.
My son's behavior in a nutshell is wild...every second of everyday is different...he does some of the typical autism things like "stimming." He seeks out weird things like loud noise or rocking or spinning, it seems to help him cope with things...he has a lot of sensory issues, with sound and touch...he has the typical socialization deficit, but sometimes I wonder if it is autistic or if he is just withdrawing...he has developmental delays and speech delays, so I know somedays he gets upset, just because I don't think he can express what he is feeling...he has good enough speech to relay what he wants but to really tell us what's going on in his mind, he can't do...his emotions are all over the place...somedays he is crying or angry all day...other days he is happy or angry all day...other days he is just plain DEFIANT!! I do notice the one consistent emotion he has in anger! But I can never figure out what is exactly causing it or get it under control...somedays he gets agressive when he is angry, other days he just screams at everyone...nothing ever seems to be consistent, other than the fact that he is not a happy little boy!
Is this typical behavior for someone with bipolar? And if so, why can't we seem to find a medication that helps? Could his autism be interferring or shouldn't that matter...could the seizures be interferring? I have talked to so many doctors, and it seems like the most common answer I get is--"let me refer you to..." I couldn't stand going through another evaluation by yet another doctor!
I'm trying to treat each "symptom" differently...we have tried sensory diets, therapies of all sorts, and of course medications.
Does anyone have any advice they could give me? I hate seeing my son suffer like this....any help at all would be sooo sooo appriciated, even if it's to point me in the right direction to another forum! Thank you so much for taking the time to listen! I'm just so lost right now, I don't know what to do.