Posted 9/8/2005 6:36 PM (GMT -7)

Chantry from about 1hour southwest of Toronto, Canada. 35 years old. Found a lump when I was 7 mos pregnant (April 2005) with first (and probably only?? sad  ) child. Ultrasound Dr. thought it was a fibroid, but due to extensive bc in my family, I pushed for a biopsy, which came back as "inconclusive". When into surgery not knowing if it was cancer or not (I was pretty sure it was), so only opted for a Lumpectomy (Aug 2). Finally have full details from surgery:

Invasive Ductal carcinoma, high grade 2.2 cm, no nodes, ER- , waiting for Her2 neu results. Plan of attack - AC +T, and depending on genetic testing, radiation or masectomy...and hysterectomy too???

Family history - (I was adopted at birth, and didn't know about the following until last year. What timing!!)

4 of my fathers aunts died of cancer. 2 from breast cancer (both under 40), 1 from a brain tumor, 1 from lung cancer. My fathers sister also died from breast cancer at age 38. 

Looking for info on all of this. What a bummer. But my daughter (born May 31) is the light of my life, and my husband is my rock. Hoping to live past 40...unlike some of my biological family.


There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay

Posted 9/17/2005 9:47 PM (GMT -7)
My name is Sandy  and I am a survivor!! I survived the poison, cut and burn, and have been taking Tamoxifen for 2 years.
After treatment ended I expected pure euphoria, absolute relief and bliss. I was dead wrong. I was anxious, I cried, I was depressed, I had major insomnia, I was an emotional trainwreck. Can anybody relate to that?!   My dream is to help others who are needlessly suffering as I was. God Bless You All!!

Post Edited By Moderator (Admin) : 3/14/2006 11:56:50 AM (GMT-7)

Posted 11/5/2005 7:45 AM (GMT -7)
Mary, lifelong Texan, living near Houston.  Dx 12 years ago, stage I.  Rad mast, implants and reconstruction.  Tamoxifen for 5 years.  7 years later (Apr, 05) cancer reappeared, Stage IV mets, liver and spine.  Now on Taxol, tumor markers are coming down!!  Also on monthly Zometa.  I'll be 64 December, 05. 
Posted 11/17/2005 12:33 PM (GMT -7)
Hi, my name is Donna, I'm 58 and from Denver, Colorado. First DX left breat 2 cm (aggressive tumor, 16 lymph nodes removed non positive, HER2 neg) July 04 had mast, and expander and A/C every other week for 8 weeks, neulasta, reconstruction and all of the usual side effects including menopause, osteo and depression!

Just when I was starting to feel human and get my hair back boom -- in June 05 had a 1cm recurrence on my scar had surgery, Taxol and neulasta every other week and then 37 days of radiation with some burns and all of the side effects AGAIN.

Just finished and after 17 months of treatment my hair is finally coming back in for good I hope and I'm regaining my hope and strength. Wish I had discovered this site earlier if for nothing else just to know that I wasn't out here by myself. I hate the times when I'm in that dark place and the scary worrying about another recurrence.

I have 3 grown children, 2 grown step children and a husband who loves and supports me! I also have fabulous insurance which I now know is critically to getting the treatment I need to move through this time. I'm lucky to have a family that is understanding and a daughter that encourages me to let others help me the way she says I've done for them all of these years. That's difficult!

I'm anxious to learn more about the next meeting --

Hope we get a cure soon.

L&H
Donna
Posted 11/27/2005 10:54 PM (GMT -7)
skull  Hi, I am Susan and live outside of Portland, Oregon.  I am 40(until Dec).  Diagnosed  with Inflammatory Breast Cancer Sept 26th 2004.  First line Chemo A/C followed by Taxotere with a double mast on Feb 7, 2005. No recon.  Diagnosed mets to Liver 2/21/05 with 95% Liver tumerous.  Started Herceptin, Carbo, Gemzar(sp)with astonishing results--tumors shrunk 90%.  Mets to Bone 8/05. Started on Navelbine and Herceptin until 3 weeks ago when mouth sores got so bad I needed a break.  I guess I cant complain as this is the first Chemo since the start that has given me any trouble.  Found out on most recent scans that my bones are healing and my liver is regressing as I have active lesions on the right lobe and an increase from 1.1cm to 2.3cm.  Here it goes again.  I am getting set to go on Lapatnib in phase 3 trials.
 
 
I am Her2Pos +++3, Estrogen Recept Negative.  To be honest I have the worst prognosticators availible. 
 
Will post more later--glad I found this site!!!!
Posted 1/16/2006 5:08 PM (GMT -7)

 

Tru, age 54, Virginia

DX April, 2000 DCIS, mast and tram flap recon June, 2000

revisions and reduction on other breast finally complete

Sept, 2004. Next month, Feb 2006 last month on tamox!

God Bless you all!

Love,

Tru

Posted 3/30/2006 8:59 PM (GMT -7)
Susan...West Virginia...diagnosed at age 37 in 1994...mets in 1999. Four children, married 31 years...will be the big 50 in September.

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