ROLL CALL name, age, state and any other info to share

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donnarock
New Member


Date Joined Apr 2005
Total Posts : 10
   Posted 4/23/2005 6:05 AM (GMT -7)   

stacy from nj! i'm 45. just finished treatment for stage 2b, grade 3, er/pr positive, hers +++, 2 out of 8 nodes psoitive. just had a cat scan and they found tiny nodules on my lungs. here we go again!!!!!

mad

Post Edited By Moderator (Admin) : 5/23/2006 10:06:25 AM (GMT-6)


cgm
New Member


Date Joined Apr 2005
Total Posts : 8
   Posted 4/23/2005 8:52 AM (GMT -7)   
Dear Laure' and Stacy

I will be praying for you both. I hope everying goes good for you both. We can all survive this with hope and faith.

I just had my 5th chemo treatment on friday and will get another one on may 20th. Then it will be time for my
ct scan if the cancer is in remission I will just receive the Herceptin every 3 weeks as a preventitive hope it works.


well got to run my thoughts and prays are will you.
Many Hugs Christine


SnufflesMom
Regular Member


Date Joined Apr 2005
Total Posts : 69
   Posted 5/6/2005 7:04 AM (GMT -7)   
Randi AKA Snuffles Mom,  Age 41 at DX, Invasive Ductal Carcinoma ER/PR + Her2Neu 2++, Awaiting 2nd surgery to see in if is in nodes.,

LauraB
New Member


Date Joined May 2005
Total Posts : 1
   Posted 5/6/2005 8:12 AM (GMT -7)   
LauraB, age 44 at dx, inflitrating Ductal Carcinoma in Situ, tumor < 1cm. Turned 45 4/18 (Happy B-day to me, huh?!) than had Mod. Rad. Mast. 4/25 with immed. reconstruction (expander), lymphs clear. Unsure as to hormone assay. Met with PS on 5/4....slight necrosis (slap me, but was a smoker). My concern is if nexrosis is reversible (nurse said yes) bur will prob delay any chemo/rad if needed and of course "fill ups". Using Neosporin now...any other suggestions? Meeting w/ gen surgeon 5/9, PS again 5/11, ONC 5/19....

Lynnie the Pooh
New Member


Date Joined May 2005
Total Posts : 12
   Posted 5/9/2005 2:15 PM (GMT -7)   
eyes  Lynn,58,Canada.In 1997 had a mastectomy+ 6 lymp nodes removed,followed by 4 months of chemo,25 radiation treatments,5 years tamoxifen.Just had 8 year check-up,awaiting results from the tests now.

cissyfont
Regular Member


Date Joined Jun 2005
Total Posts : 36
   Posted 6/14/2005 5:23 AM (GMT -7)   
Christie, 45, Michigan
dx at age 30 (left side) at age 32 (right side). Not hormone sensitive. Small lumps. Self detected.
lumpecomy and radiation, choose not to do chemo. Still doing great.
Mother had breast cancer at the exact same ages. Had mastectomy both times and radiation. Self detected.
Mother had a new lump in scar tissue a few years ago. Taking Tamoxifin. I was hormone sensitive.
Still doing great!
Relax and enjoy life!
 
dx 1983
Ulcerative colitis, lactose intolorant
meds: Asacol, Rowasa Enemas or sup. for flareups
 
Breast Cancer - 1994 and 1996


Jena-C
New Member


Date Joined Jun 2005
Total Posts : 2
   Posted 6/14/2005 6:44 PM (GMT -7)   
Jena - Cleveland, Ohio - age 33 - tram, chemo, radiation, diagnosed age 28. 5 years officially cancer-free

Post Edited By Moderator (Admin) : 3/14/2006 11:55:41 AM (GMT-7)


dak
New Member


Date Joined Jun 2005
Total Posts : 6
   Posted 6/16/2005 1:43 PM (GMT -7)   
dak, age 50, dx invasive high  grade ductal carcinoma, node +, er -, pr-, her2-.  Left mastectomy 5/31/05. 
 
Starting chemo on 6/24 6 cycles of ACT planned 3 weeks apart.
 
had CT scans of brain and abdomen, having bone scan on 6/20--anxious about results. eyes

Scorp
New Member


Date Joined Jun 2005
Total Posts : 1
   Posted 6/17/2005 1:10 AM (GMT -7)   
Hi. Donna, 45, from NY. Dx 6-10-05 IDC ~ 1.8cm ~ grade 7. No results for ER/HER. Waiting to see surgeon.

skeeter1
Regular Member


Date Joined Jun 2005
Total Posts : 97
   Posted 6/22/2005 9:54 AM (GMT -7)   

Hi, Cindy 48years, 10 miles from Lincoln Nebraska 

Dx 2-1-05 IDC nottingham combined grade 2/3 1.1cm. ER+/PR+/HER2-. 

Chemo first before surgery had 4 rounds Adriamycin/Cytoxan and 4 rounds of Taxol. Had Surgery 6-6-05 they removed 7 nodes all were neg. Recovering from surgery now and will have 6 weeks of radiation starting sometime around the first of July 05.

At the time of DX they measured the tumor 4cm after 8 rounds of chemo it shrink to 1.1cm woo woo. When it was removed they said the margins were clean and neg of cancer.

Post Edited (skeeter1) : 7/7/2005 1:48:29 PM (GMT-6)


Kattbird
Regular Member


Date Joined Jun 2005
Total Posts : 243
   Posted 7/1/2005 2:58 PM (GMT -7)   
Kathy - 47 Maryland, I surgery so far to remove lump, diagnosed 2 days ago with cancer. Haven't gone thru any kind of treatments yet.

Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 7/21/2005 7:23 PM (GMT -7)   
Bernadette Age 45
Diagnosed July 15th 2005. Infiltrating ductal carcinoma. I have my surgery scheduled for the 25th of July. I dont know what kind of treatment I will have until after surgery. Scary thing but I will make it :-) Sorry forgot to put where Im from Seattle. I had lumpectomy July 25th and a port a cath installed August 10th. Have had 2 of 6 chemo so far.
Hugs:)
Bernadette

Post Edited (Brnadebt) : 9/10/2005 12:47:11 PM (GMT-6)


tracibeth
New Member


Date Joined Jul 2005
Total Posts : 11
   Posted 7/23/2005 1:42 PM (GMT -7)   
Tracy, age 36, from Michigan.
Dx 8/99 infiltrating ductal. Mastectomy. 14+ nodes. Chemo and Radiation. Tamoxifen.
Dx 8/01 mets to bone(spine and skull) and lung lesion. Surgery to spine 9/11/01, radiation, chemo continuous. Switched to Arimidex. Started Lupron injections..
9/03 radiation to skull lesion. 4/05 surgery to remove skull lesion.
Taking a "chemo holiday" right now, and trying to decide when to go back on.
(used to post on ivillage 5 or 6 years ago).

tracyrosetti@earthlink.net

possitive
Regular Member


Date Joined Mar 2005
Total Posts : 239
   Posted 7/25/2005 8:31 PM (GMT -7)   
Tammy,43 years old diagnosed feb.2005 with infiltrating ductal carcinoma.Had left breast removed march.8 and having right breast removed aug.18 2005 (my choice)because of high risk.I live in calif.  My last chemo treatment is july.27 2005 then Tamoxifan.

BAK
Regular Member


Date Joined Jul 2005
Total Posts : 44
   Posted 7/27/2005 9:51 PM (GMT -7)   
Hi, I'm Beth, 52, from Manhattan, Kansas area......just registered tonight! I live with my boyfriend and have 3 grown sons and a grandson in CA.

I had a left mastectomy (large area of tumor) in Mar and lymph nodes removed that were cancerous, 4 rounds of AC with nuelasta shots (nausea, chemo brain, fired ovaries, night sweats and all), currently taking 12 taxol (3 weeks on then one week with neupogen shot....halfway through...hurray!), then I'll have radiation and hormone therapy. I have metastatic breast cancer. I'll have to come back to post more details because I can't remember! lol

Oh, yes...I am also taking effexor for the hotflashes, ambien at night and hydrocodone for pain due to damaged nerves in my chest and underarm.

This seems like a nice group.

***Edited 8/5/05 Here is my DX:

Invasive Lobular Carcinoma .....Metastatic left breast cancer.
3/9/05 I had a left modified rad mastectomy and left axillary sentinel lymph node biopsy and right breast needle core biopsies.
(Rt breast biopsies benign : Hurray!)

Left breast:
Estrogen positive 3+ and progesterone positive 2+
Her-2 ACIS score 1.3

*Tumor mass of 5.0 x 5.0 x 1.5 cm showing extensive invasive lobular carcinoma in a background of extensive lobular carcinoma in-situ with numerous microcalcifications. Angiolymphatic space invasion is present.

*#1 Sentinel node 1.2 x 0.3 cm "positive for metastatic tumor"
Axillary contents - 5 of 10 lymph nodes metastatically involved; one lymph node 1.7cm, additional small lymph nodes, one additional larger lymph node

*Extrcapular extension by tumor is seen.

Post Edited (Beth K) : 8/5/2005 12:40:12 PM (GMT-6)


JUJU8872
Regular Member


Date Joined Jun 2005
Total Posts : 349
   Posted 8/3/2005 11:08 AM (GMT -7)   
After 9 months, I finally asked for and received my path report since I no longer trust my rad and med onc. So, ladies, here goes:  Diagnoses: Infiltrating mammary carcinoma, intermediate grade, modified Richardson Grade II/III, tumor is 2 cm x 1.8cm x 1.5 cm. ER Pos, Her2 3+ -- later FISH test proves Her2 neg. 5 Lymph nodes involved -- perinodal extension at 3rd sentinel node. Finished 4 AC in 12 weeks, 12 Placitaxel in 12 weeks with one week in between b/c of low white counts. Now doing 36 rads. Will be on Arimidex.
 
Oops, I am 58 yo, have a sister, an aunt with b/c after 50. Great aunt with ovarian cancer and her daughter with breast cancer at 36. One other cousin with b/c. I live outside Birmingham, AL.
 
JUJU

Post Edited (JUJU8872) : 8/3/2005 12:20:20 PM (GMT-6)


puzzler
New Member


Date Joined Dec 2004
Total Posts : 2
   Posted 8/23/2005 1:45 PM (GMT -7)   
HI MY NAMES SUE DX IN 2004 HAD BILATERAL MASTIN NOV 04. NO CHEMO OR RADS AS NO NODES INVOLVED.  I LIVE IN ESSEX IN THE UK. I AM 44 MARRIED 3 CHILDREN.

ICURN
New Member


Date Joined Aug 2005
Total Posts : 7
   Posted 8/26/2005 12:10 AM (GMT -7)   
Cathy from Edmond, Oklahoma.  52 years young.  Single/divorced (28 years).  No kids, one little dog:  Sheila half Australian Shepherd, half Blue Heeler and a wild child. Travel nurse, half time Adjunct Professor of Nursing.  Into photography, Ebay, build websites and am working on getting my own site with a little store up and running.  I also love and collect orchids.  Was in the process of planning a greenhouse when I learned of this diagnosis.  Now, working on conseving funds until I know better how this is going to turn out and what my down time really is going to be.  Work with a hot air ballon crew in Colorado, when I am there and with the same crew at the Albuquerque Festival during the Octobers I can get there during fiesta. 

Diagnosis is Stage II infiltrating lobular breast cancer.  Surgery should be the Friday Sept 2, 2005.  I will have an overnight stay at the hospital.  Just had MRI on 8/22 of both breasts, so not sure yet wheter I will come out with one or no breasts.  Nodes look fine on US.  Will have chemo after surgery and maybe a little rads to axilla.  I'm betting ER/PR +, but no results yet.  93% of this B/C is ER/PR positive. 

Just cut my male companion of 4 years loose.  I wasn't that into him ---didn't see him in my future and it got to the point (real fast) that I didn't feel I could deal with him and his needs and myself as well.  Had to chose, so chose myself.

 

 

 

Post Edited (ICURN) : 8/26/2005 1:17:26 AM (GMT-6)


chantry31
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 9/8/2005 6:36 PM (GMT -7)   

Chantry from about 1hour southwest of Toronto, Canada. 35 years old. Found a lump when I was 7 mos pregnant (April 2005) with first (and probably only?? sad  ) child. Ultrasound Dr. thought it was a fibroid, but due to extensive bc in my family, I pushed for a biopsy, which came back as "inconclusive". When into surgery not knowing if it was cancer or not (I was pretty sure it was), so only opted for a Lumpectomy (Aug 2). Finally have full details from surgery:

Invasive Ductal carcinoma, high grade 2.2 cm, no nodes, ER- , waiting for Her2 neu results. Plan of attack - AC +T, and depending on genetic testing, radiation or masectomy...and hysterectomy too???

Family history - (I was adopted at birth, and didn't know about the following until last year. What timing!!)

4 of my fathers aunts died of cancer. 2 from breast cancer (both under 40), 1 from a brain tumor, 1 from lung cancer. My fathers sister also died from breast cancer at age 38. 

Looking for info on all of this. What a bummer. But my daughter (born May 31) is the light of my life, and my husband is my rock. Hoping to live past 40...unlike some of my biological family.


There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay


sandyh
New Member


Date Joined Sep 2005
Total Posts : 1
   Posted 9/17/2005 9:47 PM (GMT -7)   
My name is Sandy  and I am a survivor!! I survived the poison, cut and burn, and have been taking Tamoxifen for 2 years.
After treatment ended I expected pure euphoria, absolute relief and bliss. I was dead wrong. I was anxious, I cried, I was depressed, I had major insomnia, I was an emotional trainwreck. Can anybody relate to that?!   My dream is to help others who are needlessly suffering as I was. God Bless You All!!

Post Edited By Moderator (Admin) : 3/14/2006 11:56:50 AM (GMT-7)


marybee
New Member


Date Joined May 2005
Total Posts : 19
   Posted 11/5/2005 7:45 AM (GMT -7)   
Mary, lifelong Texan, living near Houston.  Dx 12 years ago, stage I.  Rad mast, implants and reconstruction.  Tamoxifen for 5 years.  7 years later (Apr, 05) cancer reappeared, Stage IV mets, liver and spine.  Now on Taxol, tumor markers are coming down!!  Also on monthly Zometa.  I'll be 64 December, 05. 

Donna A
Regular Member


Date Joined Aug 2005
Total Posts : 44
   Posted 11/17/2005 12:33 PM (GMT -7)   
Hi, my name is Donna, I'm 58 and from Denver, Colorado. First DX left breat 2 cm (aggressive tumor, 16 lymph nodes removed non positive, HER2 neg) July 04 had mast, and expander and A/C every other week for 8 weeks, neulasta, reconstruction and all of the usual side effects including menopause, osteo and depression!

Just when I was starting to feel human and get my hair back boom -- in June 05 had a 1cm recurrence on my scar had surgery, Taxol and neulasta every other week and then 37 days of radiation with some burns and all of the side effects AGAIN.

Just finished and after 17 months of treatment my hair is finally coming back in for good I hope and I'm regaining my hope and strength. Wish I had discovered this site earlier if for nothing else just to know that I wasn't out here by myself. I hate the times when I'm in that dark place and the scary worrying about another recurrence.

I have 3 grown children, 2 grown step children and a husband who loves and supports me! I also have fabulous insurance which I now know is critically to getting the treatment I need to move through this time. I'm lucky to have a family that is understanding and a daughter that encourages me to let others help me the way she says I've done for them all of these years. That's difficult!

I'm anxious to learn more about the next meeting --

Hope we get a cure soon.

L&H
Donna

stayinalive
New Member


Date Joined Nov 2005
Total Posts : 1
   Posted 11/27/2005 10:54 PM (GMT -7)   
skull  Hi, I am Susan and live outside of Portland, Oregon.  I am 40(until Dec).  Diagnosed  with Inflammatory Breast Cancer Sept 26th 2004.  First line Chemo A/C followed by Taxotere with a double mast on Feb 7, 2005. No recon.  Diagnosed mets to Liver 2/21/05 with 95% Liver tumerous.  Started Herceptin, Carbo, Gemzar(sp)with astonishing results--tumors shrunk 90%.  Mets to Bone 8/05. Started on Navelbine and Herceptin until 3 weeks ago when mouth sores got so bad I needed a break.  I guess I cant complain as this is the first Chemo since the start that has given me any trouble.  Found out on most recent scans that my bones are healing and my liver is regressing as I have active lesions on the right lobe and an increase from 1.1cm to 2.3cm.  Here it goes again.  I am getting set to go on Lapatnib in phase 3 trials.
 
 
I am Her2Pos +++3, Estrogen Recept Negative.  To be honest I have the worst prognosticators availible. 
 
Will post more later--glad I found this site!!!!

trublu2000
Regular Member


Date Joined Aug 2003
Total Posts : 76
   Posted 1/16/2006 5:08 PM (GMT -7)   

 

Tru, age 54, Virginia

DX April, 2000 DCIS, mast and tram flap recon June, 2000

revisions and reduction on other breast finally complete

Sept, 2004. Next month, Feb 2006 last month on tamox!

God Bless you all!

Love,

Tru


Susan9499
Regular Member


Date Joined Jul 2003
Total Posts : 37
   Posted 3/30/2006 8:59 PM (GMT -7)   
Susan...West Virginia...diagnosed at age 37 in 1994...mets in 1999. Four children, married 31 years...will be the big 50 in September.
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