Hi. I'm Vivi-Anne. I recognize a lot of you posters from iVillage and from here. I haven't been around much, just tried to keep it out of my mind!!! But, here I go again!
I live in Michigan. dx 8/97at 49 yrs. Stage II er+ and pr slightly +. 1 of 13 nodes +.
Now 58. 6/06 mets to brain. 5 lesions. No surgery, 20 rads. Looking for mets to liver and lungs. Bone scan 8/31/06.
The first weekend of June, I planted my garden. I thought I may have got sunstroke because it was hot out there and no hat, etc. Tuesday, I had to call our on-duty night person (nurse) that takes care of medical things. I had a horrible headache, and I don't get headaches. I was sent to emergency and had no problem with it. Ann called Dave for me and he was there right after I got there. I don't remember how long I was there, but they sent me home with a ton of meds--and I do mean a ton. No tests.
I went to see my gp and she sent to my onc--Dr. Arora and he ordered a MRI.
I don't remember a lot of things. I have been dx with brain cancer. Mets from breast cancer. I used a wheelchair and a 4 prong cane for a while. Dr. Arora sent me to a radiation oncologist and I have 3 of 20 treatments left. I will be glad to have them over with. I swear I am going to sleep till noon next Thursday!!
The rad dr said that the first rads would help me by improving my coordination and memory. It worked. I'm thankful! No more wheelchair or cane.
My sister, Amy now lives in Florida--south of Sarasota. She has a 5 month old baby boy, Collin James. He is a sweatheart--good baby! Amy is up in Michigan right now. I had a pelvic/abdominal scan and a chest scan yesterday. They are looking for mets to the liver and lungs. Amy took me for the tests, and will take me to to my appointment with Dr Arora next week to get the results. I have a bone scan scheduled for 8/31. I couldn't get it any sooner, but I am more concerned with the other tests right now.
My hair was way past my waist. We took pictures, and a neighbor washed, braided and cut it. I had a braid 21" long wet. It took 5 days for it to dry--2 days on my head. LOL!! I haven't sent it yet, but it is going to Am Canc Society for locks of love. I had it cut right away so the hair would be nice for the kids.
I had a party Sunday afternoon with several neighbors and friends, and Amy came up for that. It was my "Bald is Beautiful" party. We had good food, then a neighbor buzzed my hair. No tears. I am collecting hats now. LOL!! And I have 3 wigs, and my sister from PA is going to bring me one of hers.
I refuse to allow cancer to mess up my little world like it did 9 years ago. I know a lot of what I have to do and am preparing for the chemo next.
I have until Monday to get my test results, and I will not worry about it. I am preparing my questions for my onc--I'm pretty sure I will have to have chemo and I want to bypass some of those problems I had before. Like thrush and postponed treatments because my body wasn't up to the chemo.
Right now, I am listening to Mary K who always said "Don't worry until you know you have something to worry about."