Experience with herceptin?

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Regular Member

Date Joined Sep 2008
Total Posts : 27
   Posted 3/25/2009 1:18 PM (GMT -7)   
I have stage 1 breast cancer with her2+ and no node involvement. I was told today that I will need chemo, radiation and herceptin. The herceptin is for 1 year. Anyone with any experience with this type of treatment willing to share will be most appreciated.


Veteran Member

Date Joined Jul 2003
Total Posts : 2272
   Posted 3/25/2009 4:55 PM (GMT -7)   
Hi Debbie-
Sorry to hear of your diagnosis, but thank goodness it is stage I. This is a very winnable fight for you! I was borderline Her 2 + in 1999 and they were not doing Herceptin for early stage ca then. My friend is in treatment right now, she just finished with her AC and Taxol, is now on Herceptin every 3 weeks until about October. She tolerates it very well, just feels tired for a day or so but thinks it is not bad at all.
Others here have had Herceptin and should be able to offer you better feedback.
Good luck!

Regular Member

Date Joined Jul 2003
Total Posts : 68
   Posted 3/29/2009 5:04 PM (GMT -7)   

Hello!  Your Herceptin lifer reporting in. Herceptin is very tolerable as I have been taking it regularly since April of 2000 -- Yes, 9 years. I just toojk a treatment of Hercepin/Avastin this past Wednesday. You will experience some mild fatigue, but you can do this!

Hugs - Jackie aka bandlady

Regular Member

Date Joined Jun 2006
Total Posts : 36
   Posted 4/5/2009 1:03 AM (GMT -7)   
My protocol required a 17 courses (every 3 weeks). I finished over a year ago. I had fatigue, but it was hard to separate out there for a while from the chemo. I also had aching my legs. I still believe, though my oncologist disagrees, that my itching of my lower legs (I called it the heebie-jeebies) was related to my herceptin. I never had a rash or swelling or any difficulties breathing, but I did have very itchy skin that cleared up about one month after my herceptin treatments stopped.

All in all, it was less troublesome than chemo and I'm glad I had it.
Live Strong
IBC dx August 9/06
ER/PR +2
HER2/neu +
chemo August 11/06 - January 8/07
IMRT rads 5 weeks
surgery May 1/07 bilateral mastectomy (left modified radical, right simple)

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