Hello to everyone,
I am back now after a long absence. I've known all of these wonderful people for 9 years now. Unbelieveable!
I've just become aware of a silent epidemic that everyone needs to be aware of.
I had another tooth crack due to chemotherepy. The dentist sent me to have it pulled and the surgeon was horrified that she had done that. Anyone on a drug in the class of Biophosphonstes is at risk of getting ONJ and should not have a tooth pulled. I am getting a root canal instead and a lot of patchwork by a new dentist.
The dangerous drugs are: Fosamax, Aconel, Boniva, Reclast, Zometa, Aredia, Didronel and Tiludronate. Sometimes these are necessary but the correct precautions and preventive dentistry is necessary. I told my St. Louis doctor that I was going off of the Zometa and she thougt it was OK. She shook her head yes, when I mentioned the ONJ risk getting larger everday. More and more people are showing up with it since these drugs have been around longer. If I had active cancer I might take it but not now.
I just want everyone to be aware and not be sent to have a tooth pulled. Just google ONJ and you will have many sites to choose from . My best information came from my local dentist and surgeons. If they are seeing so many people with it in this small town, that is not good. I hope no one here has been affected. Di