probably having surgery

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Date Joined Sep 2003
Total Posts : 1373
   Posted 11/16/2004 8:28 PM (GMT -7)   
The OB-GYN was supportive, of my decision of wanting a hysterectomy/oopher, after talking to me, more than I thought he would be.  When I was compartimentalizing the different issues I wanted to discuss, he said "you're so organized".  My mom smiled at me.  I don't know if she remembers this, but my Dad used to always say "Ellen, you need to be more organized."  He's gone over twenty years, now.  It was a real full-circle momen, (sniff, sniff)
ANYWAY, the onc's office lost power and they cancelled the appointment.  We have to go tomorrow.  1:15. 
The OB-GYN asked me to go in to my onc and say I wanted to have a hysterectomy as well as an oppherectomy, without going into the special problems I had been having, and see what the onc says about a total for a BC patient, if he hesitates or not.  I told him I would.  It's a little devious, going in there not giving the whole story at first to get his reaction, but he won't know I'm doing this, I'll explain the details to him right away.  I think my OB wants to know how his onc colleagues are thinking, as far as this issue is concerned, and that may not be a bad thing.  There are lots of different schools of thought on this issue, and he wants to know where they stand.  So, I'll slip on my pink sleuth hat!  I'll do it, but then go into the special circumstances that make me more appropriate for a total hysterectomy than a BC patient without this possible adenomyosis, a rare type of endriometriosis.  It's not cancer, but could cause bleeding and other trouble.  An MRI is normally the next step for this.   That, combined with the other, recent complications support, but don't necessitate, the total hysterectomy.  
By the way, I didn't have my period.  As I had suspected at first, the biopsy started something, and the bleeding occurred because of that.  My ovaries do not produce any estrogen.  I am in menopause.  I also told him that I would no longer be having biopsies in the office.  He got it.
Off to the onc tomorrow.  I have to work in the morning, new guy can't do the group alone, it's an education group and he's never done it, so I have to go.  Wish I didn't.

"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius


Post Edited (coopfesta) : 11/16/2004 8:34:33 PM (GMT-7)

Veteran Member

Date Joined Jul 2003
Total Posts : 955
   Posted 11/16/2004 8:40 PM (GMT -7)   

Sending you hugs as you continue to sort out this whole mess. Sure hope that soon you will have it all behind you and you won't have to worry about it any longer!

Hugs sweetie.

Love ya,
^j^ ^j^
"What sweetness is left in life if you take away friendship? It is like robbing the world of the sun"

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Date Joined Jul 2003
Total Posts : 734
   Posted 11/16/2004 9:02 PM (GMT -7)   
Sounds like you are not one to mess around with. You play the horses well too. You are too great. I'll always remember
Churchill too. I had always wanted to go there and you made it ! Love, Di

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Date Joined Jul 2003
Total Posts : 1090
   Posted 11/17/2004 3:27 AM (GMT -7)   
The Saga of Ellen continues. What wonderful informative posts. I am reading every word. Everytime you post I learn something. Not sure it stays betweem my ears, but at least you are putting it there. Please keep the info coming. My thoughts are with you. L&H joyce
People are like tea bags, you have to put them in hot water to see how  strong they are!

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Date Joined Jul 2003
Total Posts : 586
   Posted 11/17/2004 3:55 AM (GMT -7)   
Ellen, good luck at the Onc. today. Sounds like you have everything under control and you won't be taking anything else but a yes to surgery as an answer.

-§»§«:*´`³¤³´`* Vicky «:*´`³¤³´`*§«§-

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Date Joined Jul 2003
Total Posts : 700
   Posted 11/17/2004 5:58 AM (GMT -7)   
Ellen, WOW... good luck today. Let us know what happens.

Sara Dearing
Today is a gift, that's why they call it the present!

Veteran Member

Date Joined Jul 2003
Total Posts : 702
   Posted 11/17/2004 7:25 AM (GMT -7)   
Ellen..I will be sitting right there with you...I really want to know
what goes on with you and the Dr...

Hugs sweet friend

Sometimes it is a slender thread, Sometimes a strong,
stout rope; She clings to one end, I the other;
She calls it friendship; I call it hope....

Veteran Member

Date Joined Jul 2003
Total Posts : 892
   Posted 11/17/2004 8:25 AM (GMT -7)   
Ellen, you keep doing what's best for you. I'm waiting for news after your onc. visit. I do wonder though why there appears to be so little communication between oncs. and all of the support physicians who care for cancer patients. Ah, the American medical system, it brings joy (NOT!!) to my heart. L&H's, Luci
In the depth of winter, I finally learned that within me lay an invincible summer.  Albert Camus

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Date Joined Sep 2003
Total Posts : 854
   Posted 11/17/2004 12:42 PM (GMT -7)   

I'm glad things are going a little smoother these days with regards to this stuff. I hope you finally get the answer you want, and that the surgery and recovery are a snap. I'm holding your hand, my friend.


Veteran Member

Date Joined Jul 2003
Total Posts : 2921
   Posted 11/17/2004 3:57 PM (GMT -7)   
Maybe you and STef can work together, see her post that insurance is denying her surgery. Gees hope things go smoothly for you and for her, too. Hugs MK

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