Hi Liz, welcome to our group! Sorry for your recent diagnosis...sherryg was just diagnosed too, you will find great information under the recent thread started by her related to her new diagnosis this week.
Denise's case is most puzzling to us all. She came to this board earlier this year with a breast lump and terrible luck getting in to see a breast surgeon for a biopsy. Seems in Wales (UK), they do things quite differently than here. After tremendous pain and swelling and months of waiting, she finally paid out of pocket to see a doc. Biopsy was negative for breast cancer. She began having seizures of unknow origin, and no one seemed to be treating them. Problem after problem, she finally got a diagnosis of brain tumors.
No one seems to know what kind of tumors she has, they cannot remove them or biopsy until the seizures stop. And they won't stop until they remove them. In the mean time,she has had 2 rounds of whole brain rads and another brain rad procedure, with some limited success.
To the best of my knowledge, we do not know if this is BC related or not. No one knows if the tumors are breast cancer that metastasized to the brain, if they are brain cancer, another kind of cancer or just benign tumors causing problems. Her case is most unusual, please try not to let it frighten you.
All of us here have had BC, and a few husbands of wives with BC have joined recently. We are in all stages of disease, and someone surely has some similarities to you. Please jump in and ask questions, you may want to start a new thread so that your post gets seen and we can respond.