I'm back in NV now and feeling pretty good. The cystoscope was pretty uncomfortable; the best I can say is "it's over." So here's the results.
There is extensive scarring (sp?) in the bladder caused by cytoxan exactly as the dr. thought. The scar tissue is pretty tough and doesn't allow the bladder to expand properly. That means it's in a constant of irritation. The WBC's flood the bladder because they think there's an infection. Bottom line, there's no cure, just another pill, which I've already started taking. What's one more pill added to the others I already take, right???
The dr. gave me a scrip to have some add'l testing done out here in NV. The results will go directly to him in NY. Then I need to see him in the summer just to check things out. DH will be due for another prostate bx in the summer so we'll probably go together. Yikes, talk about togetherness, now we share a urologist and can have side by side appts. I guess we'll go on a date to the urologist first, then out for dinner and drinks. Too funny, huh!!!
Mentally, I'm happy there's an answer for all of this physical discomfort. Once again, I'm reminded the BC is the "gift that just keeps on giving." Hugs from here, Luci
PS-While I was away the dr. with whom I had that disagreement about waiting in late Jan left 4 (four) messages on our machine wanting to know if I had reconsidered having the cystoscope and to please call him back. Can't figure out what's up with that. I wasn't planning on seeing him ever again, do you think I need to reconsider??? Appreciate your imput; you always give me good advice.