After having an excisional biopsy to further diagnose the abnormal finding of lobular hyperplasia, my doc told me that I should go see an Onc. doc to see if I'm high risk enough to be on Tamoxifen to prevent getting cancer down the road. I met with her and my husband and right away we knew something was wrong. She had papers scattered all over her desk and she was trying to put together the history, needle biopsy, lumpectomy, the pathology.. etc. She couldn't make head or tails out of the pathology or the procedures I had all the while I was telling her the history. She even went as far as getting the surgeon on the phone to confirm dates. She told me I'm at stage 0 and it's pre-cancerous. My surgeon and the pathologist report did not indicate that. She said it doesn't matter and either way I should be on Tamoxifen. The surgeon told me there is a risk assessment tool they use to assess your risk. She didn't do any risk assessment except to confuse my pathology.
So, later that day I went to see the plastic surgeon who worked with the Surg. onc to remove some scar tissue and adjust the other breast from a previous reduction and told him about what happened and how upset I was. First he asked me why I went to her. I told him because the surg onc wanted me to go for a risk assessment. He said that my pathology showed nothing and she was basically a quack. He said he wouldn't send his dog to see her. My gut was right. He also called some other expletives that I can't mention. He also told me that a patient of his with cancer went to her and she wasn't being treated right. Scary stuff, but there are not so great docs out there. I asked my ps if I should go to another doc for an assessment and he said no.
So, why do I have this gnawing at me that even though he said I shouldn't go to another onc doc, I feel I should. He showed me the pathology reports and the final diagnosis and it really was good. Nothing but lobular hyperplasia although the hospital path in one report called it lobular carcinoma in situ which I found out isn't cancer but a marker for potentially being higher risk than the average woman.
I'm 38, pre-menopausal, would like to have kids in the next 2 years or so. I feel like I should do something, but I don't want to take Tamoxifen or anything else. This doctor was even poo pooing my wanting to have kids at this age telling me I'm really high risk. I know that I am more of a risk than if I was 25 but my gyno is not worried about it. Thanks for letting me vent if nothing else. It's comforting to know you are all out there.
Thank G*D for my husband...he can spot them a mile away. It's very important to take someone with you to these appointments.