Michelle- sorry to hear about the joint pain, i had some of that on taxtotere as well. what worked well for me was glutamine powder, taken 2-3 times a day 1 day before and 2 days after a tx. glutamine (or is it glucosamine? help me out ladies, i can't remember).. .it's an amino acid found in the body... you buy it at a health food store ( approx $30-40) and mix a scoopful of the powder with oj to drink. it DEFINITELY helped my joint pain, as i was reminded the time i forgot to take it! that and advil were my friends! ask your onc about it.....i think it IS glutamine.
got to run, but hope that helps!
Michelle: First, according to my onco, a glass of wine or a beer every so often doesn't hurt anything. In fact, it helps to relax you. But, as she said, don't overdo! (Not a problem w/ me..lol) As for the jucazzi, ask your onco. During my initial treatments, she would not let me get in a hot tub or jucazzi. Now I have the ok. I have been on herceptin since Nov, 2003. I have it weekly along w/ the Navelbean (sp). When I would get a break from the Navelbean, then I was getting to have the herceptin 1x every 3 weeks, but thanks to our wonderful govt, it is not approved for that now. Only every week. The herceptin only takes 30 mins to administer. I seem to remember that w/ the taxol, they did keep a close eye on me. Why not ask them next time for something to help you relax or maybe sleep for awhile. Also, now that you know what to expect at the next treatment, take a movie w/ you or a good book or some music. Anything to keep your mind occupied. Now, as for the whining. I did that last week at treatment and my chemo nurse told me that I need a platter of cheese and crackers to go w/ my "whine". (She is a riot!) It's okay to whine and voice your feelings. And you aren't alone when you worry about every little new ache and pain. We all do that. If you want a pet or ct scan, then why not ask your onco to schedule one? My onco is very diligent about these tests as well as monthly tumor tag tests. Hang in there. We have all had and still have the same feelings of anger and fear that you have. Let us help you thru this.