Herceptin in the news....

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Veteran Member

Date Joined Jul 2003
Total Posts : 2272
   Posted 10/20/2005 12:14 PM (GMT -7)   
In case you have not heard, Herceptin is approved for early breast cancer now...so overwhelmingly positive, they stopped the trial early.  What exciting news!
Mine was borderline positive, I wonder if I would get Herceptin if diagnosed today...I did ask the Johns Hopkins Expert if they would give it to me now, with having finished chemo 5 years ago, and they said no way...

Veteran Member

Date Joined Jul 2003
Total Posts : 2044
   Posted 10/20/2005 2:29 PM (GMT -7)   
Hi Lori, I have heard and read about the new herceptin findings and think it is really exciting. I think the findings are just for those who are HER2+. That test was done after I was diagnosed, so I have no idea if I was positive or not. But, still, it is progress and great news. L&H, Lauri
"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
Life is not measured by the number of breaths we take, but by the moments that take our breath away.

Veteran Member

Date Joined Oct 2004
Total Posts : 826
   Posted 10/20/2005 9:08 PM (GMT -7)   
Yes I heard this and I also think it's for HER2NEU + only.  My oncologist was talking about giving it to me, but I'm HER2Neu-.  So, I think doctors have had the option even before now.  It's great for those that are +.
L & H,

Regular Member

Date Joined Jan 2003
Total Posts : 46
   Posted 10/21/2005 12:05 AM (GMT -7)   
Hey guys, I saw that news as well, and I am HER2+. I didn't get to catch the entire piece, but since this is all new to me, i am very excited. My onc told me up front he wanted me to have it, so hopefully that will be started sooner now. ;-) Carol, (((((HUGGS))))) TO ALL

Veteran Member

Date Joined Feb 2005
Total Posts : 730
   Posted 10/21/2005 1:31 AM (GMT -7)   

The clinical trial for this was going in 2001. I was part of this trial but I was in the arm that didn't get the herceptin. At one point, the trial was closed as there were numerous women that were having strokes that were receiving the herceptin. I believe that this was in 2002. I know that I had to sign  a release form even though I wasn't receiving it. I have been on hercpetin and navelbine for 2 years now - weekly. So far, the combination of the 2 drugs seems to be working. I would strongly suggest that any of you that are Her2+, going thru chemo or just recently completed it, and have NOT received herceptin, talk to your onco. Insist that he/she give you a good reason for them not giving it to you. If that reason doesn't seem valid, then seek another opinion. I know that when I was rediagnosed, the gal that was in charge of seeing if patients in my onco office qualified for any clinical trials told me that if I had originally received the herceptin, I wouldn't have had a recurrance. Needless to say, that didn't help my mental attitude and she is no longer employed w/ my onco group.



Veteran Member

Date Joined Jul 2003
Total Posts : 2272
   Posted 10/21/2005 5:38 AM (GMT -7)   
Yes, I was not clear in my post,....I meant that they are now recommending it for early stage cancer that is her2+...not for all early stage ca.

And Deb, shame on that gal for telling you you wouldn't have had a recurrance IF you had been on the herceptin...no one can say for sure, as it is not 100%. And she should no better than to make a harsh comment like that. Pooey on her. I am glad you are getting the herceptin now though and especially glad it is working! Since my tumor was considered borderline, I wonder if they would have given it to me....oh well, I am just happy that they keep making these progresses!

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