getting fed up

are you frustrated and scared?
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frustrated - 100.0%
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scared - 0.0%

 
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melissa4roland
New Member


Date Joined Jan 2016
Total Posts : 1
   Posted 1/28/2016 8:49 AM (GMT -7)   
Hi everyone.
I guess I'll start by telling you my story. In July of 2013, myself and my amazing wife became deathly ill. After 4 days of no sleep and vomiting white, foamy mucus, we decided to go to the Dr. After a round of antibiotics, nothidr changed and now we can't hold down water. As a matter of fact, water actually turned out to be the problem. Apparently, our well was found with high levels of arsenic. Long story short, Shan got better and I did not. The second round of antibiotics is used to treat exposure to anthrax. Whatever, it worked. From September to November, I had several days where my stomach felt like it would explode. The cramps would last so long and feel so deep that my blood pressure would rise. I even had to go on medication for that. Dr said it's a pain pressure and my body was basically going through hell. Each emergency room I went to, and that was 7, gave me another shot of morphine to get my blood pressure down, and tell me I have a cyst. When I finally got in to an obgyn, I had to have a full hysterectomy. Now please understand, I'm only 37. So January of 2015, I delivered a very unhealthy 11lb uterus. For any of you who don't know, the average uterus weighs 2 pounds. Mine was covered with 1 five lb tumor and 18 smaller ones. All benign, thank you Lord. However, during 6 week check up, I found a rather hard lump in my right breast. I had my Dr check it at the appointment, she says it doesn't feel like a cyst, better have it checked. A few days later, I'm getting my first mammogram and ultra sound. I was terrified. Cancer of all types runs deep in my family. I've lost every single relative on my dad's side, including my dad to cancer. The tech could tell I was nervous as she's probably seen a million times but she's seemed extremely gentle to me. I didn't feel like another number, you know? Afterwards, this lady comes in, tells me she's the radiologist, hugs me and tells me I'm cancer free. I was so ecstatic, I cried right there. 3 days later, I get a letter telling me that 5 sets of clusters were found in the top, bottom, both sides and middle of the right breast. Recheck in 6 months. I felt betrayed by the radiologist. Like I was not quite lied to but not told the whole truth. I didn't make my 6 month, life got hectic but I did get in there by 10 months. I figured it wasn't doing anything anyway because no one seems that concerned about it. A lot of weird things began happening in that 10 months. For instance, on an incidental find, I was told I have a small polyp on the inside of my arterial renal artery. Watch it every 3 months. Check. Began noticing about 4 months ago, I couldn't walk across the room and back without being breathless. My muscles in my legs turn to pudding when I get this way and I fall. My lymph nodes in my armpits are swollen. Have been for 6 months. Also, my groin lymph nodes are swollen and have been for 3 months. Got second scan done, same clusters, same spots, not doing anything but hanging out and this time said that it was a fluid filled cyst that's so hard in there. I asked about the lymph nodes, she basically ignored me. No one in the medical field seems all that concerned about me, I have no medical insurance right now which I'm sure is a lot of it, but still, I had to look up what a cluster even was on Google. Shouldn't the Dr have explained all of this? Sorry so long but I'm just getting fed up.

sherbear46
Forum Moderator


Date Joined Jun 2011
Total Posts : 3316
   Posted 1/30/2016 3:18 PM (GMT -7)   
Seem very odd. I always thought lymph nodes swell when other stuff is going on. I wish I had answers for you or advice. I don't but I do feel for you. I many times feel that the medical field is just very messed up and their is only a select few who actually care about the patient.

I hope someone else pipes in with advice for you.
Moderator UC and Breast Cancer forums
Sheri-42 years old

Diagnosed UC/IBS 04/09-Left sided 01/13 Endo showed gastritis and Colonoscopy showed only 2 cm of rectal inflammation 2015 Flex Sig showed everything clear and biopsy were clear too.
Diagnosed in Jan 2013 with Chronic Uticartia
Meds-2 Lialda, Aciphex, Allegra, Singulair, Vitamin D3, Hydroxyzine (as needed), probiotics, Canasa 3xwk
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