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Veteran Member

Date Joined Sep 2003
Total Posts : 1373
   Posted 1/7/2006 12:50 PM (GMT -7)   
Reading Erin's post was like a reunion.  I remember when we talked in Louisville at the party on the back patio.  I thought of that when I read cupycake's post.  I (of course) thought of our trip to the roundhouse when I read Candy's.  I am so so glad I have those memories of you gals and the DH's were great!  I laugh to think about his "great" idea on the driveway.  We had a similar exchange here about my DFIL's 10-pointer that DH was bringing up the stairs "just to see how it would look" in my living room.  I have fish upon fish on the walls, I really really don't want a buck up there too.  A girl's gotta draw the line somewhere.  Didn't even let him up the stairs with it. 
Well, hyster-sisterwize, I have definate experience to share with you, re: your question, Erin.  I wanted to lower all risk.  I've heard mixed reports about the risk of ovarian cancer if you had breast cancer.  The BRACA gene is the real key to knowing your risk for ovarian cancer, but the risk is there nonetheless.  In my opinion, if you're hormone positive, the risk is there, so why keep them?  I had the genetic testing done because I'm adopted and we didn't know if I had the gene.  It came back "gene of unknown origin" (like, yaaa, what did I learn from this?)  The genetic testing (which wasn't all paid for, I'm still paying it off) supported the (insurance) decision to have the ovaries taken out.  I also had painful periods since I started ovulating, so that meant that I had a provisional diagnosis of aedenomeiosis, not cancer, but not good.  This was the (insurance) justification for the hysterecomy.  I figured, why not take it all out if the reproductive system is at risk of becoming cancerous.  I kept the cervix, though, figured I didn't want to change the physiology at the roof, if you know what I mean, and paps test for cancer there very well.  He did it laproscoprically, using a machine called a morselator (pretty gross, actually).  I had it done, and had sex too soon (don't do that), just like I talked too soon after the throat surgery.  Well, there's something called scar tissue.  It's not good to have.  It's like irreversible and causes pain, and I'm not able to get my throat fixed very easily because it's so tough.  I'm pretty sure I have it in my pelvis now, above the cervix, probably because of the early sexual activity.  When I sit on the floor and play with Matthew, and I get up, an episode of pain suddenly starts that lasts all evening.  It's become consistent with that behavior, so it may be manageable.  I also have pain with sex a good amount of the time.  It starts just when it's getting to the next level.  It's starting to really pi$$ me off.  HOWEVER, my docs want to rule out a MASS.  Oh what fun this is going to be.  I have to get a CT scan.  I'm alergic to ct dye, but not dangerousely so.  I'm seriously thinking of not reminding the doc and letting them use the dye anyway so they can get a good enough look, and I'll just sneeze and itch.  Gotta schedule it Monday.  Just got the approval.  Pelvic and abdomen.  Man!  What a pain.  Either way it's a lousy thing, either pain that's not reversible or cancer again.  I don't even go there (to the cancer possibility).  I don't feel the fear, just anger.  That's how I cope.
ANYWAY.  Monday is my licensing exam and I'll see Vicky too.  I'll be fully licensed to play with heads soon!!!
Later all,

"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius


Regular Member

Date Joined Mar 2005
Total Posts : 316
   Posted 1/7/2006 2:48 PM (GMT -7)   
Good luck on Monday, Ellen, with the exam! You'll do great! I hope all is well when you have the CT. Time to be done with exams for awhile!!!lol

Thanks for your response on my previous post. I'm going to be going for genetic counseling. What is that all about, anyway? And you said you're still paying - didn't insurance cover it? I wonder if I'll be covered. I only know half of my genetic histor from my mom's side. Know nothing at all about the paternal side. I do know that my maternal great grandmother died of one of the female cancers, ovarian, uterine, cervical - no one knows. That coupled with the fact that I have BC - I hope that's enough for the ins. co. to agree to pay.

Give Vicky a great big hug from me, even though she's never met me! lol

The finger of God touches your life when you make a friend.
----Mary Dawson Hughes---

Regular Member

Date Joined Dec 2003
Total Posts : 257
   Posted 1/8/2006 5:34 PM (GMT -7)   
Miss you, Ellen!
Good luck to you on Monday (DH says, when in doubt the answer is always "Freud" or "your mother" tongue   Ha! Good thing he's not in the business, huh).
I'm having the total hyster not only for BC reasons but also the mess with being a DES daughter. I have the whole sheabang: mutated uterus, painful and extremely heavy periods, and increased cancer risk. (I still don't get how I got to be 36 and not one single gyn told me that I had a septated uterus...I would think that's kinda important to know!) Oh, so many "if i had only known"!
Sorry to hear about your pain. I think it's about time that you get a break! (If only they made me World Czar....)
But, you are one strong, funny, smart woman!

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