New here & Newly Diagnosed

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New Member

Date Joined Nov 2017
Total Posts : 3
   Posted 11/6/2017 2:56 AM (GMT -6)   
I have been getting 2 mammograms per year for the past 4 years due to frequent lumps (mostly fibroidenomas) combined with the fact that I have dense breast tissue.
At my last mammogram in August (after 2 hours of "just a few more images) they found a cluster of Microcalcifications in addition to the large lump I had found on my own in my right breast. They scheduled me for an ultrasound guided needle biopsy for the large lump and a mammogram guided biopsy for the Microcalcifications. After getting the needle biopsy they were unable to do th Microcalcifications because of the position they were in and the doctor referred me to a surgeon to have them removed and biopsied.

The surgeon decided that since they had to go in for the cluster, they'd remove the large lump as well.
Large lump was confirmed to be a fibroidenoma. On Halloween when I went in for the pathology results & My 2 wk post-op appointment the breast swelling and pain had returned and I was told that the reason it two 2 weeks was because the hospital lab sent the 9 Microcalcifications out for further testing. 3 of the 9 were confirmed to be Stage 1, Grade 2 Invasive Ductal Carcinoma. The cancer is Estrogen and progesterone positive and HER2 negative.

They decided to do blood work to test for genetic link and told me I would also need to get a lymph node biopsy. They drew blood for the BCRA 1&2 genetic test and I am currently waiting for those results. I have no clue when the next biopsy will be done.

The plans the general surgeon proposed was
1. HRT for 10 years
2. If genetic link is confirmed a double mastectomy
3. If in the lymph nodes - radiation

I am now 3 weeks post op and my right breast is still swollen and I'm still in a lot of pain. Even the water in the shower hurts and we have pretty crummy water pressure. I'm barely sleeping. I have barely left my room since Thursday. I can't understand why this surgeon is waiting until after the genetic test results come back to do the biopsy. I called a cancer center on Thursday and will go in on Tuesday for a 2nd opinion about all of this. Don't think I've ever been this scared about my health in my whole life.
Truncus Arteriosus Type 1A-1979
Arnold Chiari 1 Malformation- 2011
Scoliosis of the C-spine- 2014
Major Depressive Disorder, General Anxiety Disorder, PTSD, Insomnia & Obsessive Compulsive Tendancies-2015
White Matter Disease-2017
Invasive Ductal Carcinoma (stage 1, grade 2, ER/PR +, HER2-) - 2017

New Member

Date Joined Nov 2017
Total Posts : 4
   Posted 11/13/2017 3:12 PM (GMT -6)   
You story sounds similar to mine. The open incision biopsy was mammogram guided tot he chip they placed when doing the needle biopsy. (The mammogram machine injected what appeared like a fishing line with hook on the end!) The surgical oncologist mad a 4cm incision just about my areola at the 12 o'clock position and carefully tacked both sides to avoid a tear. The spot he needed to reach was all the way down to the muscle. He swirled the wire around and popped out a perfect cone shape. The surgery was done on a Wednesday. Thursday was the worst day for pain, but I was back to work on Monday.

I do not believe that you should still be in significant pain. I would encourage you to call your doctor. Had you been icing regularly? The other thing, it will take a full year before all of the swelling is gone. A few weeks removed from my surgery I was super excited about my healing. A year later, not so excited and opted for some minor reconstruction.

I wanted told the doctor that I wanted a double mastectomy - he indicated that was too radical and too high risk.

He said that I did not need radiation because mine was still fully contained in the lobes.

I am on Tamoxifen treatment for at least 5yrs which has been no walk in the park either, but doctor's do not want to speak about that.
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