I kept mine in for 6 months past when I was done with Herceptin, which I had for a year, so I think I had it in for about 1.5 yrs. I did NOT want it in the first place, but had to give in when my arm veins wouldn't cooperate after the 3rd chemo. After I got it and it settled in, I didn't want it out!!! It was SO NICE not to have to deal with them trying to find a vein, but I developed this red mark where the tube tied into my jugular vein, so my onc wanted it out. darn. but that was december 2002 so I've been without it for over 3 yrs (doesnt seem like that long!). Ironically, the red mark is still there, and never went away. I call it my 'permanent hickey' and cover it with durablend makeup. no biggie. good luck in getting yours out, and don't worry about ever needing it again.... just cross that bridge if you ever have to in the future..... and you may not!
Bernadette: My port was put in when I had my mastectomy (2001) and it is still in. My surgeon said that it could be removed after I finished chemo the first time. Heck, I couldn't see it and I told her to just leave it in. I would be taking a shower and panick because I thought I felt a lump. Then I would realize that it was just my port. Who knows what the chances of your cancer returning is. None of us can predict that. If you want it removed, then do so. Whatever makes you feel good. I am sure that your dr is just being cautious.
Keep a close watch on your skin. Don't let it get to red w/out having your rad onco give you some meds. Be sure and tell them about the pain that you are having. I am sure that it is normal but they need to know.
In order to see the rainbow, you must first endure the rain
I had mine removed at the same time as my surgery before radiation. I had chemo first then surgery. I told my surgeon to remove it the onco doc and surgeon and both agreed to it. They also said that if my path came back bad I may still need it. God was with me and my path was good so it all worked for me.. I figure if I cancer again then I guess I get port again, thats just a given. I am glad its out. Gosh on another not. I talked with my onco about my bad leg pains after working such long hours he said to go off my arimidex for 10 days and when I see him he will try maybe femera anyway I have been off now for 5 days and its amazing my leg pain are all but gone and I have more energy then I had before. Now I know forsure that all my leg pain were due to the arimidex. I just hope the femera will be better. It give me faith that once I get off all of the precautionary meds that my legs will be fine.. just wanted you to know... hang in there k and do what you want with the port if you want it out by all mines get it out... skeeter1