Colour me confused

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Regular Member

Date Joined Jun 2006
Total Posts : 36
   Posted 7/21/2006 12:10 PM (GMT -7)   
...and that would be the understatement of my life.
All indications say IBC. Visual changes alarming. Mammogram showed nothing. Ultrasound showed nothing. MRI indicated likelihood of IBC but only in upper left quadrant near armpit and into armpit, not throughout breast.  Biopsy around nipple came back negative (yeah me) with some atypical cells.
Now my surgeon wants to do a biopsy in the area indicated in the MRI (she didn't have MRI results when we did first biopsy).
I'm not sure whether to be scared still that it's IBC or whether we're on to a different cancer -- and now I can't reach my surgeon to ask the question.
I'm on such a roller coaster.
Do I discount the first biopsy?
Sorry if this sounds is!
Life is short, wear your party pants!

Veteran Member

Date Joined Jul 2003
Total Posts : 1106
   Posted 7/21/2006 3:49 PM (GMT -7)   
Gayle, I don't think you should discount the first biopsy, but I understand your worry about the next one. The waiting and wondering is AWFUL, as I am sure you know. I will send positive thoughts and say a prayer that it is also negative. Hang in there sweetie, we waiting with you.
  It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.
Elisabeth Kubler Ross

Veteran Member

Date Joined Feb 2005
Total Posts : 730
   Posted 7/23/2006 8:56 AM (GMT -7)   

I agree w/ what Gail has told you. Don't discount the first biopsy. I am pleased to hear that your dr is not letting this go and is wanting to see just what the problem is. You can always ask that your results be sent to another radiologists to read.

Keep us informed.



Veteran Member

Date Joined Jul 2003
Total Posts : 2921
   Posted 7/24/2006 4:50 AM (GMT -7)   
I can sure understand your confusion. Your doctor sounds like he/she is on top of things, checking it all out. You have my thoughts and prayers as you make decisions. Hugs MK

Veteran Member

Date Joined Jul 2003
Total Posts : 857
   Posted 7/24/2006 6:25 AM (GMT -7)   

Hello Gayle - First, sorry you are dealing with this....

I was dx in Feb 2001. Some redness, inverted nipple, LARGE mass. I had surgery in March 2001, and I had a 4.5 cm tumor with 5 of 49 lymph nodes positive.  Stage IIB. VERY aggressive cancer, ER-/PR-, Her2neu 3+++.

 Just four months prior, I had a CLEAR mammo and ultrasound.... (personally I think that mammo 'broke' or 'exploded' the tumor, causing it to advance so fast in 4 short months).  Anyway, my onc thought I had IBC, my surgeon thought I did not.  We did a 'skin punch biopsy' to test for abnormal cells, but the surgeon said that depending on exactly where we tested, we may or may not hit the bad cells.  The test came back negative.  They kept telling me that IBC was a 'clinical diagnosis' not something that was verified/refuted with a lab test.  So, although mine 'had characteristics' of early IBC, we can't know for sure.  The only strong indication is that my moms sister was also dx w/ IBC in 1998, and luckily, is still here.... (YAY for her!).  SO, it is likely that mine was IBC too.

good luck with your 2nd biopsy... can they test a lymph node instead of looking for a mass?  thats what we did with mine... we never did actually test the mass via biospy, only a lymph node in my breast.

many hugs- stefanie



"It's been worth everything I've been through,
 To do what I do"

                       To Do What I Do   -Alan Jackson, 2004

Veteran Member

Date Joined Jul 2003
Total Posts : 2044
   Posted 7/29/2006 6:51 PM (GMT -7)   
Sounds like you have a good, proactive doctor that wants to make sure all the bases are covered. Lucky you. Hang in there. We are with you all the way. Hugs, Lauri
"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
Life is not measured by the number of breaths we take, but by the moments that take our breath away.

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