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Regular Member

Date Joined Jun 2006
Total Posts : 36
   Posted 10/31/2006 7:17 PM (GMT -7)   
I've been a little bit MIA for a while, though I have read posts every day. I've been focused on trying to get through chemo (ain't that a chore?). I've got 4 down and 4 more to go.
But today I FINALLY got the word that I'm HER2 positive (not sure where on the scale yet, didn't ask because the brain just froze).
There are things in life that just aren't fair and this is definitely one of them. Isn't it enough to battle IBC? Isn't it enough that I'm diabetic? Isn't it enough that I'm ER positive as well? Do I need any more complications?? NO, darn it, I don't.
And I made the mistake of trying to find out more about being HER2 positive. Why is the news available on the web always the most depressing sort?? All I accomplished is scaring myself worse.
Please, I could use to good news.
I know I'll have to talk to my medical oncologist some more, thank goodness I see him on Thursday.
I'm sorry, I have got a serious case of poor, pitiful me. sad
Live Strong

Veteran Member

Date Joined Jul 2003
Total Posts : 2272
   Posted 11/1/2006 4:58 PM (GMT -7)   
Hi Gayle-
You are entitled to a pity party, we all have been in your shoes. Sorry you are having a tough time...

But hooray for you moving through chemo so well, half way done! That is a big hurdle to cross! As for Her 2 status, I do not know much of the details about it, but the very good news about it is that Herceptin is available in the adjuvent setting now, for early stage BC. I think mine was a 2 out of 4, which was considered borderline positive. In 2000, when I did chemo, herceptin was only available for Stage IV cancers, in most cases. Now I think they give it for stage I or II, and the results are supposed to be pretty amazing as far as keeping people disease free.

And being ER+ is a good thing too, not a bad thing! It means you have an arsenal of hormone receptor medications that can also keep you disease free or slow progression of cancer.

And try not to let statistics get you down...they are numbers that predict the overall outcome, but no one can say how you will do...

Hang in there!

Veteran Member

Date Joined Jul 2003
Total Posts : 1564
   Posted 11/2/2006 3:30 PM (GMT -7)   
I agree with Lori. At least you know that there is a very effective drug out there and avialable to you should you need it.

Good luck to you!

Cancer ...the gift that just keeps on giving! Don't you wish we could send it back???



Veteran Member

Date Joined Feb 2005
Total Posts : 730
   Posted 11/5/2006 6:05 AM (GMT -7)   

Hi Gayle! Hope that you are feeling better by now. All of us have "pity parties". Heck, we really deserve a better party than that w/ all we have been thru.

Regarding the Herceptin. 6 yrs ago, when I was first diagnosed, I was in a clincial trial for Herceptin. Unfortunately, I didn't get it and had a recurrance 2 yrs later. By then, the trial had their results in and I was fortunate enough to be able to get the herceptin and another chemo. In Jan I was given an all clear after 26 months of weekly treatments. I now get herceptin monthly as a preventative treatment. The hercpetin is a very easy chemo. It doesn't have the side effects that others have. You don't lose your hair or your taste buds. I have never been nauseated while on it. Just a little tired. I also am a diabetic (since the recurrance) but it is something that I can deal w/ and so can you. BTW..I was a Stage III and had 19 of 21 lymph nodes positive at my original diagnosis.

That is great that you are HALF WAY thru your treatments. Only 4 more to go. Wow, can you believe that you have already finished 4 of them? Before long you will be able to celebrate the end of your treatments!!!!!

Keep the faith. Don't be afraid to get mad or cry or yell or scream or throw things. All part of the acceptance and healing process. We're here for you friend.




Veteran Member

Date Joined Sep 2003
Total Posts : 1373
   Posted 11/6/2006 6:21 PM (GMT -7)   
Hey!  Glad you're using the forum for the best part.  ears that listen and can handle a pity party with TLC.  That's a milestone that you made it past the halfway point in chemo!  you go girl!  This is the toughest part, getting used to it.  good luck and keep posting
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius
Don't knock on Death's Door.  Ring the bell and run.  He hates that.


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