Well that's where I get confused. Twice i was put in for what they thought was cardiac but gave me the dx of chost. Keep in mind that i had an "abnormal ekg, but normal echo", i have no clue of why or what this means. I was told that sometimes with disease , ekg's will change over the years mildly and sometimes for no reason at all. Ive had exrays of the heart and passed a stress test 3 yrs ago (ill probably repeat that last one).
Yes, its a mystery. The larger hospitals don't think so. They say MS. Ms is a great immitator also. Therein lies the problem with all of the limbo for many.
Hon? I fit the criteria for every symptom of fibro and every symptom of MS, and more than 4 of lupus. Keep in mind that the crossover symptoms are great numbers.
Now, a good question that might help crack a bit of this puzzle on our own is, Lupus does not have spasticity? Correct? If it does not (and im going to look at your link, ive studied other lupus sites before too)...if it does not then this is def something that has spasticity. It is episodic as Ive gotten 65 good days of feeling normal.
Other times its been 30, 22, etc. before it slams me again.
I do agree with you about
its devestation. I have a g/f at my church with it. To be honest I siimply don't wish to downplay the other diseases as they can be of a severity that is unreal also. They usually don't carry that prognosis but again, they can.
Lupus is very very sad. My friend was dx'd with MS for 1yr before finding out she had Lupus. She also thinks I have it. One reason is the blood and protein in the urine-always. Thats been there for 10yrs though and i was told it was think membrane of my kidneys due to prior infection.
The part that gets me is he said no when I asked about
it. To be quite frank , ive suspected it all along. For one reason, yes i have all those symptoms of ms that mimmick lupus and vice versa but then there is skin involvement at times!
Oh, and lets not forget that it is possible to have both (his friend he was training reminded me of this).
I have a place in my head that they say was either a mild tia or head injury. It is in the white matter though.
I guess Ginny I'm simply repeating what you did, LOL, that its a mystery! I struggle daily and find even my first few good days (out of episode) to be hard as the memory of what i've just came through is still very fresh. Lots of pain and lots of sensatons for sure.
Thank you Ginny for your prayers, they are def. needed and I will be praying for you. Everytime I speak or see Rhonda (friend from church with lupus) ill let it remind me of you and i'll pray ok? I know your sooo young to have all of these things. I'm totally thrilled that you have faith though!!!!!!!!
This particular doctor really is my friends doctor for her lupus and he's the one who pulled the old renal biopsy so i do know that he's looking for it or lets say looking to rule it out. A bit of both. He made a comment when I asked about
Sle, he grinned and said no, but there are a few rare ones that are immune deficient that i believe you have one of. (so helpful huh?)
I take b6, magnesium, calcium , and on copaxone at the moment , until they finish sorting this out.
I pray that I dont have both. I surely do not want lupus , but Id not know what to do if I had both!
Thanks for your reply!
and ginny? Your so right that it needs more exposure/awareness and funding!!!!! If it were to be brought to the light as much as breast cancer and ms there might be many more breakthru's!
Every day brings us closer to what we reach for .........in all things.
Post Edited (Kiera) : 1/4/2008 1:03:02 PM (GMT-7)