Sorry it took me a few days to get back to you. Okay. You don't have MS. That is a for sure right? An MRI would rule that out right away. The lesions that MS causes are extremely distinct. Can't mistake them for lupus or anything else. So that's good.
Now, the anemia..... I'm sorry to tell you this, but anemia is VERY common in lupus. It's one of the most common symptoms. I had chronic anemia when I was diagnosed. I was so anemic that everything I ate went right through me (gross, sorry). I was losing weight and looked anorexic. It was brutal. I was extremely tired and fatigued. As soon as I was diagnosed, the prednisone kicked in and the anemia went away. I get a slough of blood work done every month to monitor my hemoglobin levels and all the other crap that I deal with, lol.
Also, many people are now being diagnosed with lupus without having a positive ANA. The reason is that your ANA fluctuates rather quickly. So you can go from positive to negative and back to positive again in just a few weeks or months. So don't rely on that test for a diagnosis.
The dystonia and spasticity you experience, can be a symptom of lupus. I've heard of it happening. Every now and then, I'll all of a sudden have an arm or a leg go flying out to one side, or I'll just be sitting here at the computer and my whole body does a "jump" of sorts! It's weird! I wonder if it's the same as what you're describing..... Hmmmm.
Lupus can manifest itself over a very long period of time. Giving small symptoms and then getting more and more aggressive as the years go by. When I track back to when I started having "issues", I was 13. It wasn't until I was 26 until I had enough symptoms and weird stuff going on to get a diagnosis. this "could" take a while. Or, it might happen quickly. Just too hard to say.
Keep a daily diary of your symptoms, your sleep patterns, menstrual period, appetite. Pretty much everything. It will help you keep track of what is going on, and when you see your doctor, you'll have loads of information to pass on. This disease is as frustrating for the doctors as it is for us. We all need to work together! Do you have more labs coming back?
Have a good start to your week Kiera. Don't hesitate to come over to the lupus forum if you like, okay!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus