I'm really sorry to hear about
everything you asre going through and I don't blame you for being scared. I don't know much about
the proceedure you are having so I can't help much with that.
Our CFS forum here is pretty slow, so I'm sorry if you don't get many responses. You could try posting on the MS forum here - even though it doesn't sound like your docs are suspecting MS, some of the people in the MS forum might be more familiar with the tests you are having done.
Hang in there and I hope you get some answers soon.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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