newbie.. scared

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New Member

Date Joined Feb 2008
Total Posts : 2
   Posted 2/21/2008 6:59 PM (GMT -6)   
i been suffering with issues like the electric impulses through my body.. i am american currently in the uk, and moving back to usa in 15 weeks..

in the mean time i am being seen by a nerologist in london, one of the top in the country.. and they are going to do some neroglical testing since i have no family background really.. i was adopted.. even thought i do have contact with my bilogical mother's family, they do not know much about family background..

well i found out today i am going to have to have an EMG, and i am terrified... i had one in 1996 back in the usa. and it was a really really bad experience... and i am trying to show my husband why this is so scary... if anyone has any websites that explain the PAIN this tests can endure i would appreciate it.

they think i have an illness called mitchondria cyndpathy , which is somewhat rare.. and if this comes to be the diagnosis, i may have to be seen at the cleveland clinic , since that will be the nearest speclist hospital where i will be.

i am really really scared... scared is not a realy good word but i cannot come up with a word that says how frightened i am..

i need to know what is the matter with me, but part of me says .. hang on what if it is really bad... or what if it is just phycogoical and it isnt real...and my brain is causing the pain.

i am experiancing these jolts through my body which causes me to jerk, i am experiencing weaknesses in my whole body, i am experiacing like a feeling when i walk.. i got these rubber bands around me and it makes it difficult to walk or move.. only way i can explain it... i was born with a mild form of cerebral palsy and this doctor thinks that was even that could have been a mis dianosis... i dunno how to really deal with all this emitonally.. i been living in england due to i met my husband on the internet. we married and i immigrated to the uk.... now he is retiring and we are getting ready to immigrate back to the usa. in the mean time .. having all this pain.. and going to family doctor and him saying nothing more we can do. .i got angry and found this neurological hospital in London.. so i started enqjring .. well .. now i am within weeks of being admitted for 4 days for them to do these neurological tests... what can i expect..

i am really really tired all the time.. i find i canot handle or control my emotions. .when i am angry i am really extremely angry and when i am sad .. i am extremely sad and when i am happy.. i am extremely happy... there is no medium

in 2004 i had gastric bypass surgery and lost 160 pounds.. and thought OK .. now i got my life back..and them WHAM all this pain started to hit.. well the pain was always there but heard.. well if you lose weight you would feel better.. well i lost the weight .. NOW WHAT !! I HEAR.. nothing more we can do.

I am on 1200mgs of gabapendin , and 400mgs of Remidin forte' 3 times a day. i feel so high all the time..but the pain is gone .. but i cant seem to control anything.

am i going nuts? please .. ... someone help.. thanks.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 2/22/2008 10:00 AM (GMT -6)   
I'm really sorry to hear about everything you asre going through and I don't blame you for being scared. I don't know much about the proceedure you are having so I can't help much with that.

Our CFS forum here is pretty slow, so I'm sorry if you don't get many responses. You could try posting on the MS forum here - even though it doesn't sound like your docs are suspecting MS, some of the people in the MS forum might be more familiar with the tests you are having done.

Hang in there and I hope you get some answers soon.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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